High creatinine levels causing sweats

Hi Hugh01 welcome to the forum and I am so very sorry to hear about what's been happening for you. I'm wondering as this is a very specific medical question if you may like to go to Ask an Expert on this site and post your query in Ask a Nurse. They won't be back in until Monday now but could maybe answer with some helpful and useful information..I don't have ability at this point to insert the Link for you To Ask A Nurse but it is Ask an Expert. 

Ok, thank you. I will ask them tomorrow.

Yes, I had night sweats about 2-3 months after starting ipilimumab and nivolumab.  I went to the GP because people on here said night sweats was common and I could get something to help.  I got bloods done and then ended up visiting oncology.  My liver function had fallen, and creatinine was increased because of too good a reaction to the immunotherapy.  Too much inflammation in the kidney tubules so the kidney couldn;t do it's job properly.  Steroids followed to calm things down and I restarted treatment about 6-8 weeks later.  I still have impaired kidney function but it doesn't impact my daily life.    Suggest you get in touch with your oncology team, for advice.     

Here's my blog about it  Acute Interstitial Nephritis - May 2022  

For me, the night sweats was what drove me to the GPs.  I'm not sure that the rise in creatinine caused the sweats, but once the body was subject to the fix, the sweats stopped.  

Thank you for your reply. Mine are actually sweats during the day rather than at night, on my face and upper body. My main cancer nurse mentioned the possibility of steroid injections so I will discuss it again when I see them next week.

I hope you're responding well to your treatment.

Hi 

My husband had the exact same surgery right removed and partial left removed.

He wasn't offered any treatment but his creatinine levels are high and he gets hot sweats so it sounds like it's the creatinine levels are the culprit. 

He had his surgery 2yrs come May and is monitored  with blood tests and scans every 6 months  and is doing well but gets very tired and frustrated as he can't do the things he use to but as long as he's here and getting better bit by bit as it is a long process.

I hope you make a speedy recovery and all the best for the future.

Jaxx

Hi,

Thank you for your reply. Does he take anything to try and lower his creatinine levels?

Thank you. I hope he continues to get better.

Hi

He has high blood pressure and the Dr put him on tablets but his kidney score dropped dramatically so had to come straight off them

He can just be sitting and all if a sudden the sweats come on and lasts a couple of minutes then he's ok. So I don't know if it's hot something to do with his blood pressure.

Thanks for your kind words . 

Jaxx

Oh right. Hope there's some alternative meds for his blood pressure.

Unfortunately mine invariably last all day when I get them. Have tried everything to stop them from eating or not eating certain things, stopping or starting certain drugs etc but nothing seems to work. My ice mask provides temporary relief but it's rarely permanent. Such fun.

Oh that must be so frustrating and irritating. I just hope uou can get some relief with something soon.

I expect you have asked uour consultant about it .I just hope someone comes up with something ASAP.

Don't give ip hope and wish uou well. Jaxx