Hi all, i had a radical left nephrectomy for aggresive stage 3 clear cell carcinoma, in July 2023, am on a first round of Pembro, I have the last one of my Pembro treatments in September 2024, and im not coping at all, i cant talk to my family about how im feeling and there is nowhere nearby i can go to to talk to someone, theres a Macmillan unit where i get my treatment but im so wiped out at the end of it, I just want to go home, its tearing me up with all the unknowns, my cancer was only found by sheer luck, it had grown in a year and i had no symptoms. I dont know what to do, I dont drive and get patient transport to my treatments, my family is elderly and I dont have any close friends (theres a long story behind that and other things) , im crying most nights in my room and feel so down.
Hi Mythicdreamer
I was sorry to read your post, and your feeling low after your operation.
Although I did not have surgery, in many ways I am in a similar social situation to yours, and can relate to your feelings of isolation.
I do have a couple of suggestions for you: Macmillan have teamed up with BUPA to offer free telephone counselling sessions, and Macmillan also offer a 'buddy' service, where you get matched with someone who you can chat with regularly on the phone.
I'm only suggesting these as they don't require you to travel, or drive. There may be support groups that you could access, or maybe call in at some coffee mornings held locally, if you are available during the day.
You may feel socially isolated, as I do sometimes, but there are ways of connecting with people in your local area if you feel able to.
It may also be worth having a chat with your GP about your mood, if it is worrying you. But remember it is OK to not feel OK! Everyone experiences low patches on their cancer 'journey', and this is quite normal. If you think you need some longer term help with this, your GP can help.
Last of all....keep posting on here! There's always someone around to talk with, and who understands what living with cancer can be like. The Emotional Support forum may be the best place to find others who are having similar experiences to you.
I hope you do start to feel more hopeful soon!
Best wishes
Candysmum
H there, so sorry you’re feeling low after your operation and during treatment. The suggestions from the other response sounds great and make sure you continue to communicate either online here, or chat to one of the support groups mentioned.
I’m new on here and have yet to have surgery. I take regular supplements and find vitamin D is great for my mood and daily multi vitamins. Are you able to get out for walks? Just leaving the house for 10 minutes will alter your mood too plus things like meditation / breathing apps help too and help reframe your mind x
I'm sorry to hear about what you have written above. Feeling low is part of the process afterwards. I too cried for weeks and weeks, I'm nearly 8wks post op and my husband and my parents will tell you , I cry at the drop of a hat, my emotions are still all over the place!! I'm with you 100% . Big Hugs!!!! sorry to Hear that you have no family or friends during a time when you really need them. I can imagine how you feel after treatment, you must feel exhausted. You're doing better than you think though, honestly. I promise.
I'd say contact your macmillan nurses, they should be able to offer some advice, local places that you could attend. Definitely speak to your GP you should not be feeling alone during these times! Everyone needs support. Please contact them today. You hopefully have a bypass telephone number so you're not having to wait ages on the phone!
My kidney cancer was an incidental finding. 8cm tumour, contained, cancer was ChRCc stage 2. Mines a long story which I won't go into right now. I've some information on my profile. Xx
please always reach out on here. Currently still home, but return to work on 21/8 so won't be on here as often only of an evening xx but we all do respond xx it's a nice little group. I joined because no one else knows how I feel in my family albeit they are extremely supportive and my husband too, but none of them are going through it!!! So easier to talk to people on here too. Xx
Take Care
Lots of love
jd
not good, theres nowhere locally that has cancer support , my area seems to be a deset, theres plenty of support places miles away, ive spoken briefly on the phone but i dont get much privacy as im living with family (its a complicated story) and Ive just had my positivity hit for six by my own brother who basically said he wished id never come back and that the cancer had done its job, so im in a bad place right now
I'm sorry to hear that your family dynamics aren't great, I don't know your brother, but what an awful thing to say to anyone!! however please know should you wish to offload, chat , this is the place to do it.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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