Hello everyone my name is Lynda and I am now 76 years old. I have been fighting kidney cancer for 22 years now. I have had 5 major open surgeries culminating last year in a Whipples Procedure when the original cancer metastasised yet again into my duodenum. The Whipple removed the head of my pancreas, part of my stomach, my duodenum, gall bladder and bile duct. In the past out came my kidney and 3 separate segments of my lungs. I know how incredibly lucky I am to be alive and am so grateful to my doctors and my family and friends but since my Whipple I have lost something inside that kept me going before. I feel so very low a lot of the time, so sad, so frightened and I try hard to hide it but it is becoming so hard. I would love to just talk to people who understand my sadness and fear. If you have time to reply, it would mean a lot to me. Thank you so much.
Hi Granjulina
It sounds like you've had a long and difficult time and it's not surprising that you're feeling as you do.
I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
You might not be aware but Macmillan have teamed up with Bupa to provide up to 4 free counselling sessions for people who are struggling emotionally because they are living with cancer. If you'd like more information about this just click here.
((hugs))
Hello, thank you so much for your response and the information. I will definitely look into that. It was very ki d of you to reply, thank you :-)
Hi Granjulina,
Sorry to hear you have been through so much I can fully understand your depression, feeling low and anxiety you feel, I myself have only been on my journey for over four and a half years now, I get frightened scared and anxious from time to time and as you know waiting for results is so overwhelming, every time I have pain anywhere my first thought has the cancer spread and than the anxiety sets in, my mind starts working overtime and I imagine all sorts, if I was 22 years and counting I don’t think I would cope with all that stress, all checks I have I start stressing out feel sick and worry myself silly, I do have my husband, family and friends but you can’t always be open with them so you just get on with it sorry it is rather long I am sending you hugs and best wishes Sandy xx
Wow you have been through a tough time and still ongoing! Like the others have said I am also not surprised that you're feeling low. Cancer is an odd feeling, although millions of people have it/had it, you seem to feel alone. You are doing well, stay strong, this community has helped.do you have family around you?? Do you have close friends who you can go out with to take your mind off of things albeit for an hour or so! ?
I had my cancer removed 6 weeks ago, full kidney removal. I totally understand the fear .. for me even though I've been told it was all removed I'm very anxious. The thoughts race around my head at 100mph... people say "oh it's gone now" yes of course and for that I am very grateful but you never stop worrying, for me I feel worse , as although I was diagnosed in April 2024, I apparently had cancer developing in 2021!! Missed diagnosis!! so now I feel like "what if" they have missed something else in my body?!!? I know I shouldn't think like that but I do! I'm 43. Married. Most of the info in my profile x
Take care.
always here.
Ah thank you so much. I responded with a message through your friendship request before I read this. I do have a really lovely family who support me but my ongoing illness over so man years has been really scarey for them and I often feel so bad about that. But I am lucky, I have a good husband, three grown up children and three lovely grandchildren who started coming along a couple of years after my first surgery. They have filled my life with joy and purpose but now they are growing up and yet another new phase of life has begun. I do have good friends too but you know how it is, I am sure...brave face outside, keep emotions hidden most of the time. It was lovely to get your reply, thank you so much. X
Hello Sandra thank you so much for your lovely reply. It meant a lot and it helps so much to share the worries with someone who really understands. I have a wonderful supportive family too but like you I often have an outward smile when inside it is very different. I hope at least that knowing I have survived this long helps you a bit - I know it always helped me to hear of others who survi a good while. I am awaiting scan results at the moment so the usual anxiety. One of the things that has really helped me over the years is painting and art journalling which has helped me get out emotions out onto paper without having to say a word. I don't know if that would appeal to you but if it does, I would becreally happy to suggest some wonderful online sites that have been really important to me. Anyway I send you my love, support and prayers, stay strong, stay positive. Love Lynda x
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