Hi there,
Looking for some advice please.
I had a nephrectomy in April 2023 after they found a 17cm by 16cm by 11cm stage 3 tumour attached to my left kidney. At the same time they also discovered i had severe endometriosis which had damaged the tubes connecting my right kidney and my bladder and I got a 24cm stent inserted to help the kidney drain. I have since had this changed under general anesthetic 3 times and have been advised i will need this to continue for life.
My question is about pain. I have constant lower back pain on my left if i sit for any length of time, making it hard to do my desk job. The pain can sometimes take my breath away. It goes all the way up my back on the left hand side. I was prescribed naproxen by the gp but advised against taking this by my urologist due to damaging the kidney. I also get pain down the left hand side of the front of my stomach..like it is super tight and sore to touch. This and the constant need to pee with the stent mean i struggle to get rest at night.
I use a hot water bottle LOTS and do stretching exercises to try to release it but no matter what i do it is there daily.
I wondered if others had pain like this......it's so hard to describe. The physio thought it was referred pain from the right kidney on the right hand side but it's gone on so long now.
They suspect my tumour was there growing for over 10 years and i know i had a large haematoma intially after it was removed but nothing has shown up as alarming in any scans so i wondered if it was maybe nerve damage or something like that and if anyone else had had anything similar and had some pointers on how to deal with it.
Thanks in advance 
