Re diagnosis advice

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  • 49 subscribers

Anyone on here had kidney removal with it growing into vena cava?. Looking for advice on aggressive right kidney tumour and immunotherapy

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm not a member of this forum, so can't help with your question, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • I can't help with kidney removal or growth into the vena cava, but I am on immunotherapy - going to stop after a 2 year stint.  Did you have anything specific you wanted to know?  Is it in regards to immunotherapy after kidney removal?  There's a few people on here having pembro for that.  I'm in the other category - immunotherapy after it's spread elsewhere.  It's done me well but time to stop before I get any significant adverse events like diabetes or adrenal insufficiency.   I will return to immuno if the bu55er raises its head again.