Post op fatigue

Hi Jude55 

I'm sorry to read how exhausted you're feeling after your recent operation.

I haven't had a nephrectomy but I noticed that your post hadn't had any replies yet so responding to you will 'bump' it back to the top of the discussion list where it'll be more easily seen.

While you're waiting for replies, it would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Hi Jude55, 

I had a radical nephroureterectomy on 24th April following chemo, it did take a few weeks to settle into some sort of sleep pattern and a good few weeks before I was comfortable to lay on my side again, but it did happen and I am, and have been feeling so much better. 
Emotionally I am still a bit out of sorts, but I think it’s inevitable after major treatment/surgery. I was told about a really good article called after the treatment finishes - then what,  by Dr Peter Harvey, I cannot recommend it enough. 
Hope things improve for you soon 

Hi Jude55,

 I am sorry you are having problems with wind and not sleeping if you are new to the community I would like to welcome you, I had a my left kidney and spleen removed on the 30th December 2019, I personally did not have trapped wind as I had open surgery and I am a bit of a wriggler so I am able to sleep on my back, did they not tell you at hospital how to get rid of the wind before you came home if you have a nurse you can talk to or ask on the Macmillan help line they will help you out, I hope you feel better when you can lay on your side to get some sleep and out of pain once the wind goes as latchbrook said it may take a bit of time but I hope you feel better soon sending lots of hugs and best wishes to you Sandy xx

Hi Jude55

I was exactly the same as you. I was in so much pain after surgery. It was all down to trapped wind and I was badly constipated. The wind pain lasted about a week for me, maybe a bit more but it did finally start to pass. I also don't sleep on my back but had to after surgery. I slept basically sitting up for months and even now after 17 monthsI find it more comfortable to sleep half sitting up. I'm still pretty exhausted at times but I'm 50 and not very fit. The fitter you are the better for recovery.

Hopefully you'll get back to your normal routine soon but just take it easy on yourself. Its a tough old time. xx

Thanks for your reply, I'm so glad you're feeling a lot better albeit emotional at times! I appreciate he honesty! I will look for the article you have mentioned thank you! I have been told I shouldn't need anymore treatment just regular scans do i feel very lucky! 

Take care

Hi Jude55 

This is the article that Formula was recommending After Treatment Finishes - Then What? by Dr Peter Harvey.

Thank you Sandy! I had open surgery too as my tumour was 16cm! They got it all and i shouldn't need to have anymore treatment, just regular scans 

Everyday is better i have to admit and I know eventually I will be able to sleep on my side! 

No advice fom.the hospital to speak of, although they were amazing while I was there!

Thanks for the live and hugs! I hope you are.well now! Xx

Thank you I'm 58 and like yourself not very fit, I'm trying.to do a bit more.each day! My oncologist rang me.today to see how I was getting on and he seemed pleased with what i was telling him so that made me more.positive! 

It's so nice to know we're not alone in our journeys!

Take care!