It’s tomorrow!

Hi Sandy, thanks for your message ….I have the pillow advice firmly in my head now  I will let you know how it goes and thanks for your encouragement xxx

Hello study to be quiet….that’s a great name . Thank so much for telling me your experience x much appreciated, Jules xx 

Thanks Nicky, I hope that your appointment goes well and you feel contented by which ever decision is made. I really appreciate your message xx

Hi Jules Good luck today and stay positive.

Love the chuffing thing one of my colleagues uses it all the time   also good things come in small packages as my Mum used to say she is 5  foot 2 inches and had part of her kidney removed 25 years ago so fingers crossed

Let us know when you feeling better.

All the best you will smash it.

Mike

Good luck Jules today. You will have your best sleep ever and it’s over before you know it, I am starting radiotherapy today too. Take care and sending positive vibes to you xx

Hi again Jules, I have just come across this and wanted to say how much I LOVE it! Thank you for writing this before your big day. I am so glad to have seen it. Your words are very moving and inspiring. I also liked 'the chuffing thing needs to come out' and 'i will be asleep'. I have shared this with my husband and it's given him a much needed laugh!

So great to know you were back on this site so soon after your op. That's blown my mind a little tbh (in a good way)! Hope you are doing well today. Sending you our best wishes! At 4 foot 11, I have brought my stepstool to send you a hug xx

Hi Sandy  Jules and the rest of you folk. I have been re reading all the chats and quite honestly, you all inspire me. The words of encouragement are heartfelt, honest and friendly. Aren't people great;  they just know what to say. I shall go to sleep now  thinking of you all. I will never meet you but l share your hopes and sometime despair.

Adrian aka Suffolkflyer ( l still haven't worked out why l gave myself that alias... l live in Essex  ??)

Thank you SD, I am glad that you liked the post x I did hope that it may help someone. That’s the great thing about the site….when one of us is down, then another will help to pick us up.

I don’t do any social media  …..when I got a message on this site to say that someone had reacted to one of my posts….I didn’t know what it meant! ….But I am so glad that I did join this forum

You may find occasionally that you haven’t got the energy to respond to messages that people send to you….don’t worry, everyone will understand.There may also be days that you want to have a cancer free break and not think or discuss cancer…..and so won’t go onto the site….think we have all been there

I am doing fairly okay thank you, although woke up early in pain again with the trapped gas. I have had a lovely boost today though in that my fab friend came round to blow dry my hair ( she is a hairdresser) and that’s made me feel so much more human after just dry shampooing it since the op. I got up yesterday looking like Rod Stewart!!,

I find trying to remain positive helps me….. but on the days I don’t feel that way, I don’t beat myself up about it…..and yes, I too have been listening to S Club 7 ‘Reach for the Stars’ ( blame Mike)

So pleased to now know someone smaller than me

Take care, hugs Jules xx

• Hi Adrian. I really hope you are feeling much better today. I noticed you now have access to a few of the books re kidney cancer, when I was diagnosed 17 years ago there was nothing like that around. This time with my secondary I have found the information invaluable. As said before I had as much of the tumour removed on 14th March by having my throat and back operated on. Today was my first radiotherapy session. It’s one of 5 sessions. Was absolutely fine and totally pain free. The nurses explained everything step by step and were so kind and lovely to me. I hope that all of you receive the same information, kindness and support that I am receiving in my lovely Cornwall. We only have one big hospital down here and they work miracles with such limited resources. Well done guys. We love you xx

Hey Jules, lovely to hear from you. I hope you are continuing to improve and the pain and other effects are settling down and vanishing as much as they can. What an excellent treat, to have your friend come and do your hair. What a wonderful friend, I completely get what a boost that must have felt!! May there be more treats upcoming for you

You were certainly right to pre-empt the lack of energy to log on, I am'crashing' a bit currently. And I can disppear for ages...of course I don't wish the tiredness on anyone, but it is nice to know other people who get it

Thank you again, for the positivity you exude. I have bookmarked this thread so I can come back to it

Here's something I do, if it helps anyone else reading here: I try to write down (in my phone or a notebook), one good thing from each day. I call it my 'happy book'. When I am too ill or tired to write in it, I get to look back at it and see things that cheer me up.

I am not the one with cancer, it is my husband. But after many years of agony with endometriosis and then the 'trap' that is ME, you try stuff like this. If it can help anyone else, that would be great, you never know.

I will keep an eye on the site when I regain some energy and check how you are doing.

Huge hugs to you, SD xx