Tumor staging

FormerMember
FormerMember
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Hello, I had a robotic assisted partial nephrectomy seven weeks ago. A CT scan had detected a 4cm cystic renal mass which indicated a small kidney cancer. Having discussed the pros and cons of a biopsy the decision was taken to proceed straight to surgery.

The operation was a success, and I was discharged from hospital 3 days later. A follow up call with one of the consultants’ team several days later confirmed that the mass was indeed cancer and that it had been removed with clear margins. Relief.

This week I had a more detailed post op review with the consultant surgeon. He confirmed the success but added that it did show aggressive features. Up to this point, having read the literature I was given I had assumed that the staging was T1as the cancer was 4cm or less. When I asked about staging I was told that it was in fact T3a and there was an intermediate risk. However no further treatment was needed at this stage.

I was taken aback, comforted with the news that no further treatment was needed at this stage but somewhat concerned that it was at a more advanced stage. At this point I couldn’t think what else to ask.

My care has now been transferred back to my own health board, they don’t offer this procedure, and I have a face-to-face meeting with my own consultant next month.

Has anyone had a similar experience? And what questions should I be asking at this stage?

Thanks.

  • Hi @benry52

    Welcome to the kidney cancer group.Kidney canceri is a  relative slow grower, but you may want to "watch n  wait", ie have regular monitoring scans, but not actually have any further treatment till / if necessary.

      Meds are being developed all  the time n are either oral or. a mix of oral n immunotheraphy.

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to buttercup01

    Many thanks, I'm coming to terms with the diagnosis and agree that fear of the unknown plays on your mind.

  • Yes  I remember feeling the same way myself, even tho it's now 16 years since I had my radical nephrectomy.

    I've been stage 4 for some time now n still have regular monitoring scans.  n take meds. It's a part of my life which I don't dwell on - till it's scan time, then I get " scanxiety" till I get my results. All is stable just now.

    Best wishes, Sue

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.