anyone feel better after first nivo/ipi infusion

it’s been a very tough couple of weeks, not the treatment side effects just the cancer making him very ill :( he’s been in and out of hospital and in bed at home. the last two days he said he’s felt a slight improvement and has started eating a bit again.

Hes got a slight rash which i’m hoping is a sign that the immunotherapy has kicked in!

Fingers crossed it is the immunotherapy kicking in. Do keep in touch

Hi my husband developed severe colitis as a side effect of this immunotherapy combination. He has only had two infusions when this happened resulting in a 9 day stay in hospital on steroids. Now home we are waiting to see his oncologist to find out if he will be able to have further treatment. I wondered if your husband has been offered any alternative to the immunotherapy 

Dear Liv,

im so sorry to hear about your husband. It must be so hard for you both. My husband was due to have his final treatment (4/4) last week but was unable to as his liver function wasn’t great so he had to take steroids and is having regular blood tests. He’s back in to see the oncologist today to see if he can continue treatment. They haven’t suggested any alternatives as yet. I guess we’ll find out today. I will keep you posted. Sending you lots of positive vibes xx

Dear TheRungRedi

I hope you get some good news today. The worst thing about this whole journey is the one step forward two steps back roller coaster. My husband is v weak at present and the waiting for our oncologist to send us our appointment date after stay in hospital is excruciating. Hugs xx

Hi ,

Good luck to you both re hospital x

Thought I'd just pop a link to some great news about nivolumab / ipilimumab here. Always great to read something positive! 

https://www.kcsn.org.uk/nivolumab-ipilimumab-combination-extends-treatment-free-survival-in-kidney-cancer-patients/?fbclid=IwAR1Cjce1vU8_DEArOTqkWBdwFJzETefVYJannMq7uw9QEG1MUBes2fN4XsE

Hello

i started on the combined nivo/ipi infusion with my first on 18/12/19. I felt fine at first if very tired, but did pick up a non related infection over the Christmas holiday, complicated by my asthma, which laid me quite low.

my next blood test on 6/1 indicated some liver function problems, which is apparently one of the potential side affects. So for the moment the treatment has been put on hold while I take steroids to resolve the liver issue.

My oncologist is confident that this will work and that therapy will recommence soon. I hope so as much feedback seems to be that this combo can have v. good results

None of this impacts my day to day life and I hope your partner starts to feel better soon

kind regards

Michael

Hi 

my husband was on this combination for two infusions . He did not get any immediate relief but it is I understand different for everyone. He has kidney cancer with liver and lung mets. At present he is off the treatment due to side effects which again are different for everyone. 
good luck hope it goes well x

Hi RungRed

i hope your husband is doing ok. We saw the oncologist today after my husbands severe reactions to the immunotherapy. She says it is best to stop treatment for 2/3 months before trying any new treatmeNt. 
He finishes his steroids in a few days. Has anyone else been given a treatment break and how did it work out. He has mets in his liver and lungs. 
Thanks for any comments/advice xx