Recurrence after three months post nephrectomy?

FormerMember
FormerMember
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Hi all,

 my hubby was diagnosed with a 9.5cm tumour on his left kidney in July this year and had a radical nephrectomy in August during which they ruptured the tumour - we were told it was dealt with and cleaned.

His pathology showed it as T3a N0 M0 predominately grade 2 cells, focal grade 3 (can anyone please explain what the focal bit means?).

He suffered a wound infection about three weeks after the op which was treated with antibiotics.

In the last two weeks he has become really bloated with gas and you can see his tummy is bloated. He was admitted to A&E this Tuesday and given a CT scan. 

He has been told there is a small mass where the kidney was removed which could be a recurrence or something to do with the op - would a recurrence show so soon?

Also where his laproscopic wound is they said there is some internal blood an necrosis.  He now has to wait in hospital until Monday (it's now thusday) for their MDT meeting to discuss and he hasn't been given any further info such as what would be the options if it was recurrence etc.

Back to being so worried and waiting :(

Thanks for taking the time to read

  • FormerMember
    FormerMember

    Hi pugs2411

    From everything I've ever been told I'd honestly be surprised if there was a recurrence so soon - particularly one causing that degree of reaction. 

    IF which the more I think about it the more I think unlikely - it is - then there are a lot of options for treatment going forwards. I'm not surprised at all that they haven't been discussed, it could literally be a none conversation. However IF it is, then please take as much comfort as you can from the fact that there are many of us here who are stage 4 and being treated and living pretty much perfectly normal lives with every intention of living them for an awful lot longer yet xx

    Focal grade is the highest grade of cell in a tumour. Basically, most of the cells in the tumour were grade 2, which is great - but a few were grade 3. Hopefully this is surgery / wound related and things will start to improve again very soon.

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you for taking the time to reply. He is getting a visit from the oncologist tomorrow so hopefully they may be able to shed some light on what is going on.

    I really appreciate your kind words. Thank you 

  • FormerMember
    FormerMember in reply to FormerMember

    The doctor has been round this morning and ordered a full ct scan as he said there are some ‘worrying indicators’. The oncology team are visiting at some point today.  I am so scared and worried.

    his full ct scan four months ago showed N0 M0, how could it go wrong so soon :( 

  • FormerMember
    FormerMember in reply to FormerMember

    Will keep everything crossed that it’s not a recurrence and you get some answers very quickly. Let us know how you get on xx

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks Jo, i’m just clinging to the fact there was no metastasis four months ago so anything they find will have been caught early.

  • FormerMember
    FormerMember in reply to FormerMember

    cancer has completely come back and aggressive, they are starting immunotherapy next week but said it only works for 50%, devastated. scared.

    dont know how to tell our boys, 10 and 14

  • FormerMember
    FormerMember in reply to FormerMember

    Oh my goodness. I am so so sorry Cry

    The only thing I can say from experience is take your time telling your boys. They don’t need to know today. Give yourself a bit of headspace first. I made this mistake with my son who was 14 second time round. I told him it had come back the day I found out and I didn’t make a particularly good job of it. I got too upset to be able to reassure him well. I was cross with myself that I had told him so quickly after finding out myself. The result was he went to google and spent the next three months thinking I would die imminently. I’ve only just found that out three years later and I feel awful about it.

    immunology has the potential to be great. Someone has to be in the 50% that works. Your husband is young and strong and hopefully that will stand him in good stead.

    I know we will all be keeping you in our thoughts for the very best outcome.  

  • FormerMember
    FormerMember in reply to FormerMember

    may I ask what treatment you had? 

  • FormerMember
    FormerMember in reply to FormerMember

    You can ask anything at all. 

    I'm on Pazopanib which I take daily. 

    I think has experience of nivolumab if you’re being offered immunology. I do remember when I was diagnosed second time my oncologist being very optimistic by the work being done in this area.  At the time immunology was my third line option, but I know things have changed since then.

    Is also starting on a mab around about now I think? Maybe he can shed some light on the immunology side too .

  • Hi

    Really sorry you've had a recurrence so soon. Do keep us posted x

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.