what happens next

Hi Owl58

I'm sorry to hear how poorly your husband is at the moment and it's understandable that you want to know what happens next.

I'm afraid that I can't tell you as I had a different type of cancer but, if you don't get any replies from the other members of this group, you could post your question in ask a nurse and one of the specialist cancer nurses will respond within 2 working days.

x

Hi owl58, I've not been online for a few days but notice nobody's  yet replied to u.

As Latchbrook suggested,  asking in "Ask  a nurse" would b a good start. 

I have various mets, but none in my bowels touchwood.

The medics don't usually operate further, but instead rely on systemic drugs to control/ deal with secondaries . Several ppl in this group have been on systemic drugs for years.

Have u got a date for your husband's scan yet?

The iron tabs will give him constipation, the diarrhoea could b overflow ( ie linked to the constipation)

Little n often is probably a good idea re food, but worth asking that on the Bowel, secondary cancer group as they'll know more than on here.

Hope that helps x 

Thanks it does. We had a letter from his consultant saying he needed deferred systemic treatment ??? What is that. Googled but all medical papers so none the wiser.  Days of badgering and complaining got us an appointment with an urologist and a date for a scan. Scan is later this week. We looked into private scan costing 1400 but couldn’t get a letter from consultant to progress this so will go to scan this week. In meantime he became too ill. Not eating etc. Went to A&E. He is now in hospital with sepsis and needs blood transfusion incidentally we were interviewed by bbc for our experience. Mmm. From now on complaining and badgering is the only way to get anyone to listen. We still don’t know the extent of his masticated kidney cancer. Friends have all come to us and providing lots of support for practical stuff. Now he is in hospital I am selfishly going to enjoy a good few nights sleep. Who knows what is round the corner. 

"Deferred systemic treatment" means systemic treatment but not yet. Systemic treatment treats the whole of your system at once, eg I have several mets so was taking an oral drug which targeted them all, rather than just one.

Enjoy your sleep while u can,tho I'm sure you'd rather have your husband at home with u, than in hospital with sepsis.

Yes, it sometimes seems badgering and complaining is the only way to get stuff done. Good luck with this week's scan

 Keep us u to date won't u?

Following his scan he has been told he has secondary cancer in liver. They will tell him tomorrow what the options are. Being in hospital is hard as he is alone with this news even though we talk and text on the phone. He is currently having blood transfusions. It would be good to have some hope but we are both fearing the worst now. 

Fingers crossed  re treatment plan. Once u know, it'll stop the what ifs x

Hi Owl58

So sorry to hear your news, what a blow for your husband to have the sepsis too. Really hope he is feeling much better very soon.

Can I just ask is the liver tumour in addition to the colon? 

Yes. He has been told he will have targeted treatment for both once the infection has cleared. 

Just been told today that there is no treatment for him. Cancer very aggressive and he has a couple of months at best. Will be arranging palliative care when he is discharged from hospital. Broken-hearted 

Oh owl58, I'm so sorry to hear your latest news. My thoughts are with you xx