Kidney cancer update and brain mets

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An update on things. I was out at the coast last year on a day trip with my son, when I collapsed, but still aware of my surroundings and then taken by ambiance to the local hospital, where I had some tests, including scans. Not long after I was seeing my oncologist. My cancer had gone to my brain. That was a shock. I have been given tablets to stop any seizures, which I had at the time of my incident. Touch wood, nothing has happened since.  I was on Cabozantinib, which was replaced with Everolimus, which isn't working according to my oncologist. I have a other scan coming up, so who knows. I am also on Denosumab for bones. I was never one much for tablets before all of this, even Paracetamol, only as a last resort. I'm not one for giving up on things, whatever it is, and wondering if anyone else is going through similar things. There is only me and my 3 children, all adults, early, mid and late twenties. I do have a brother near by who never bothers to keep in touch, though I've e tried too many times, though I do have a good neighbour. My late mum knew the family and saw them growing up.  It just seems never ending. My oncologist first said I am a walking miracle, then it feels like I am being written off with the letter she sent after the recent appointment.

  • Hi Ormebeau

    I'm sorry to read your story...it must have been very scary when you collapsed when you were out.

    Even if your oncologist's letter wasn't encouraging, you may get better news when you see her again to discus the scan results. She may suggest trying another drug, or a different treatment. Don't give up hope!

    Yes, taking medications it can feel like they are taking over your life! I hope you can find the time to do things that you used to do, to maintain a sense of your 'normal' life.

    Have you thought about reaching out for support or companionship? This forum is great for connecting with others who are going through similar experiences to you. There are Maggie's centres and Macmillan centres, and other independent cancer support groups around the UK. There may be one near you that you can visit. It certainly helps to spend time with others!

    I hope you keep posting here, and get to know many of the people who use the forum. 

    xxxx Kate