I posted awhile ago but did not hear from anyone. Start my immotherapy on the 27th for a year every two weeks. I was wondering who went through this and the results you got. ANYONE?
Do you know which immunotherapy you will be receiving ?
I started my immunotherapy on the 28th of April on pembrolizumab. But I was also put on targeted therapy of Lenvatinib. The Lenvatinib has been very hit and miss due to issues with blood pressure and now headaches so not on it at present.
So as far as the pembrolizumab is concerned I have had no major issues. A bit more tired than usual. I also suffered from nausea but found that drinking ginger tea helped with this and now have no nausea at all. I am on a 6 weekly cycle intravenously and all is fine.
I was on ipilimumab and nivolumab between Jan 2022 and June 2044. Stage 4 spread to the lungs. I was fortunate to have very good results and niggly side effects. This wasn't after a nephrectomy.
I started immunotherapy in January this year taking Ipililumab and Nivolumab. Was scheduled for 4 sessions over 12 weeks. Only had 1 session and received terrible side effect of a skin rash & itching all over. It was horrible to deal with and I couldn't have any more treatment until it was under control. This took several weeks and during scheduled appts the Docs kept saying I couldn't have more treatment as this would make the side effects worse. This was a concern as obviously we want treatment so that it keeps us here as long as possible. Only 66 and not ready to go just yet. Was reassured by Docs saying that 1 dose I had can stay in my system for up to 2 years and they were "happy" that it was working. Had a CT scan at beginning of April which showed some shrinkage in the size of the mass/tumour on my right kidney along with shrinkage in a couple of spots in my lungs. Now on monthly treatment of Nivolumab for as long as it takes. Still get some slight skin irritation but nowhere near as bad as when this started so, onwards and upwards.
I did Ipi/Nivo Sept 24 - Nov 24 now on Nivo only. Stage 4 spread to lungs. I too was fortunate to have a good response, this was after a nephrectomy.
Side effects included damage to thyroid and adrenal glands treated now by a daily tablet to replace the hormones. Itching at first although, this seems to be under control with anti-histamines.
Very glad I had the opportunity for Immunotherapy.
So pleased to hear about the shrinkage in your tumours. I'm due to have a scan in July so I'm hoping to have similar news. Although I've only been on pembrolizumab plus lenvatinib. And currently off the lenvatinib due to headaches. I see the oncologist on the 8th. I'll ask about the possibility of two immunotherapy treatments rather than pembro plus the targeted.
Hi, I had my left kidney removed on 10th December 2024 due to having a cancer in the middle of it. I’m currently having immunotherapy with Pembro, I started my treatment in February with a 3 weekly course, my blood results showed that I was ok to proceed onto a 6 weekly course and I’m now halfway through the treatment, as for side effects I’ve not had many apart from fatigue and tiredness. I’m still currently working as a tractor driver. I have had 2 CT Scans done with no recurrence. Hope this helps you
