Kidney cancer more information

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Hi,

My dad was diagnosed with a very large kidney tumour. He underwent an open radical nephrectomy last week where they had found it had unfortunately spread out the kidney into the stomach wall. Fast forward another week my dad had been having problems with his bowel so they did a CT scan where they found more of the same tumour behind the colon which they had manage to miss during the surgery. My dad had more surgery yesterday where they removed more tumour from the colon and also found that it had perforated the colon so he now has a temporary colostomy bag. 

My question is does anyone have anymore information about kidney tumours metastasizing into the colon as from what I can gather this is extremely rare. We have to wait for the results from the pathology to come back but the doctor yesterday said it was an aggressive cancer. 

Many thanks.

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your dad's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi Cmao,

    I'm afraid I have no knowledge or experience of the cancer your dad has. But I just wanted to drop by and say Hello. I have only been on this forum a couple of weeks, and I see your post is a month old so I do hope things have been going ok for your dad.

    That is an awful lot of surgery to have to have in a short time. I do hope the surgery has cleared enough of it away and perhaps chemo will have been offered to help still further?

    I am so sorry....very very hard on your dad and very very hard on you. 

    Please keep us updated if you can. To be suddenly and unexpectedly thrown into the cycle of hospitals and treatments and surgeries and appointments, not to mention the anxiety and stress caused by any illness, not least something like this, is pretty life-changing to put it mildly. I do hope you feel the support from this community and can glean some reassurance and comfort from being here and seeing that you and your dad are certainly not alone.

    Hugs to you both Hugging

  • Thank you so so much for the response, much appreciated.

    Unfortunately I don’t have a good outcome…

    It has now come to light that the perforation mistake made during my dads first surgery to remove the tumour is what cost him his life. They failed to notice they had made a perforation at the time of surgery and dismissed the symptoms after surgery so as a result contents of the bowel was left leaking for a full week before having a scan and going back to surgery. My poor dad died as a result of severe septic shock and multi organ failure nothing to do with kidney cancer. 

    Such a heartbreaking story, quite surreal in fact. The corner has requested an inquest and we have a serious RCA complaint underway at the hospital. We also have a very good medical negligence solicitor taking on our case. We will not let our dads death be for nothing. Once this is all over I will be getting this story out there.

    Just want you to all to be an advocate for yourself don’t let anyone dismiss anything you may feel is wrong with your body, no matter how small. They all ignored my dads symptoms and my gosh don’t I feel guilty for not kicking up more of a fuss when he was so unwell after surgery.

    Thank you for reading and I wish you a well on your personal journeys x

  • Omg Cmao I am so very sorry at this outcome - and also, like you are, angry! so I am very glad you are taking this further and I wish you the very best in this negligence suit. I am shocked at the appalling lack of concern and care in your dad's surgery! 

    I am sorry you had to re-live this by the fact that I bumped up your post. However, that is a very strong and important message you have given us all: that we should never ever fail to question or mention anything we don't feel is "right" with our body. I am a right one normally for doing this...I think they cringe at the GP and the hospital when they see me coming! I have a list of questions and need every one of them answered. Even when I logically know that it sometimes isn't possible for anyone to have all the answers. 

    But when you are feeling below par, or when, as with you yourself, it is a loved one and nobody else except that person can fully know what their body is feeling like, it's not easy to be strong and stand up to the medics and say "I need this investigated more". So please, please try not to beat yourself up about not pushing for more from the medics at the time. We all go through a phase of guilt when grieving and we very often turn the guilt on ourselves for want of who or what to actually blame. 

    In your case, with the distress of seeing your dad very ill, it was NOT up to you to be responsible for directing his treatment - that was the medics' job!  And I am certain the inquest, with the support from your negligence solicitor, will recognise this. Whilst it doesn't bring your lovely dad back, it indeed may be of a little reassurance to you in the future to know that you have fought to the end for your dad's rights and that his right to quality care and treatment has been recognised, and the failures of the medics involved have been acknowledged.

    I wish you well on your journey and send you lots of Hugging...thank you for sharing your tragic story. We are always here if you ever need to come back for a chat.

    Hugging