Hello there. It’s nearly a year since I had a short notice (4 weeks) partial nephrectomy.
The two big things I’m having to deal with are depression and a different tolerance for exercise, as well as issues with low energy.
Firstly with depression, it became critical recently and have an appointment with an occupational health expert this week who will make some recommendations hopefully to my employer, as work has been a lot to handle.
However I did listen to the excellent Shine podcast - Not your grandmother’s cancer show - three days ago and on their mental health episode they mentioned a study stating depression after cancer is really common not necessarily at the time of the operation but in the years that followed, especially if you had experienced trauma from life events beforehand, all of which I have had.
I would definitely be interested and very grateful to know if anyone else has unexpectedly experienced increasing depression a year plus after their operation and anything they did to recover?
Secondly exercise wise, it’s like my body has changed and no longer responds to running and exercise the way it did before. All understandable I know especially with the depression diagnosis, but I used to be able to run 50K and now can barely manage 5K, even with training.
I sometimes wonder if I did too much too soon after the operation which may have affected my energy levels long term, though again that could be the depression effecting everything.
So just also wondering if anyone else experienced a complete lack of fitness and energy still a year after surgery despite trying?
I also apologise if I sound foolish and ungrateful - I realise I’m lucky to be alive and able to get outside at all.
Hiya Tim. I like u went through the whirl wind of accidentally finding my cancer to removal of kidney. You don't even have time to process it all. So it's no wonder you can go in to depression. Also we may be able to live with 1 kidney but by eck it must be a shock to the body's system, so again maybe a bit of chemical imbalance adds to a depressive state. Be aware I am no medical person. As for energy levels. I just recently found that there is a thing called cancer fatigue. Both macmillan and cancer uk mention it. A few years ago I was diagnosed with chronic fatigue, no reason why. And I had to adjust my life accordingly, accepting what I could do and when, without putting myself back in bed for days. Now my energy levels have changed again. Watching my healthy hubby still climbing and walking and enjoying life, while I gave up and couldn't see the point as I could only manage small walks with my new puppy. The epiphany came. I needed to adjust again. So hubby and my sons and I sat down and made some adjustments to suit me and them. We had noted that for me I could run an hour with good energy. Then I needed to just sit and rest for an hour or so. Then I could do some more...yesterday I actually did 2 hours moderate work in the garden with my hubby. Sorry about the essay..but what I am saying is. Adjust your goals Tim. U over do it physically and brooding mentally will hold u back. What was, is not now. Deal with now slowly, adjusting how u go and you may find u will build that nergy back up. But it will take time, patience and most of all it will teach u how to listen to your body. I hope this sort of helps. Hugest hugs. reach out if u need us that's what the forum is here... Wishing u day of epiphanies....
Hello TB and nice to see you here again!
now can barely manage 5K, even with training.
Yes! I concur! I'm 20% slower now (running) and it's so much hard work. I used to run for relaxation and headspace but now I'm struggling to complete a 5k. I can't keep up with my cycling group easily so I've bought an electric bike too. My oncologists aren't that interested and I get it. They're trying to manage the cancer and I'm moaning I can't run an 8 min mile any more. I don't know whether it's the cancer, the treatment or getting older (55). I suspect the trial (Scancell modi-1) as I felt even more normal after starting that. I didn't have surgery as it had spready before discovery. I've tried a couple of times to run more, add some intensity etc which has lasted about a week. It's a vicious circle > hard work > no enjoyment > lack of motivation. The dark nights aren't helping, either.
I agree..I think cancer really takes its toll on the body and the mind. Thankfully we are still here to moan and laugh. We support each other and I find such comfort from all in this forum. I know it isn't easy at times..i havent touched my art or my needlework and knitting, which is unusual for me...when I sit down I just fancy nodding off...but the nights are getting lighter, my chickens are laying eggs again and not long before the pond is full of spawn again...the mud will be gone so walking, cycling and running will feel much more refreshing. Just keep taking the vitamin d soon the sun will be strong and warm again and so shall we...hugs and love
Well I'm sorry you feel the same way. It's tough. It's easy to forget that running IS hard. I definitely took it for granted.
I really appreciate the time you took to share this and reply. Hope you can find what normal is for you and progress.
Thanks so much and take care
I feel the same, had a full nephrectomy in March 24 and although my recovery has gone smoothly nearly a year down the line I struggle with fatigue and some days feel really low. I have nerve damage in my hip/thigh area which doesn't help with exercise or sleeping. Some weeks I can go to the gym 3 times and do 10k steps a day and the next week I'm asleep on the sofa as soon as I come in from work there's no specific pattern.
Like you everyone tells me how lucky I'm and of course I am but having cancer has changed my body physically and me mentally and emotionally. So I keep it all bottled up which can also be draining as I feel if I let it all out I might break.
My 1 year check up is coming up so hoping for positive news this might help with the mental effects.
I hope you start to feel better soon.
Thanks Pam
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