Depression and energy issues one year on from partial nephrectomy

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Hello there. It’s nearly a year since I had a short notice (4 weeks) partial nephrectomy. 

The two big things I’m having to deal with are depression and a different tolerance for exercise, as well as issues with low energy. 

Firstly with depression, it became critical recently and have an appointment with an occupational health expert this week who will make some recommendations hopefully to my employer, as work has been a lot to handle.

However I did listen to the excellent Shine podcast - Not your grandmother’s cancer show - three days ago and on their mental health episode they mentioned a study stating depression after cancer is really common not necessarily at the time of the operation but in the years that followed, especially if you had experienced trauma from life events beforehand, all of which I have had.

I would definitely be interested and very grateful to know if anyone else has unexpectedly experienced increasing depression a year plus after their operation and anything they did to recover?

Secondly exercise wise, it’s like my body has changed and no longer responds to running and exercise the way it did before. All understandable I know especially with the depression diagnosis, but I used to be able to run 50K and now can barely manage 5K, even with training.

I sometimes wonder if I did too much too soon after the operation which may have affected my energy levels long term, though again that could be the depression effecting everything.

So just also wondering if anyone else experienced a complete lack of fitness and energy still a year after surgery despite trying?

I also apologise if I sound foolish and ungrateful - I realise I’m lucky to be alive and able to get outside at all. 

  • Wishing you so much good luck with oncology etc. I'm finding that the bit at the time of the scans is hardest for me too. I have my oncologist call at 3pm today so we will see. Take care xxx

  • Ooo good luck with ur phone call...let me know how u go on ...well only if u want to share...thinking about u...just got my hospital leaflet out to see who I should ring..so ty for the kick up the proverbial button

    Rofl

  • Totally understand where you are coming from. However for me I'm someone that always flew around at 100mph...!( I am not an exerciser!)  but in my general day to day life I did things, one of the things I enjoy is pottering around the house, cleaning (I think I have ocd) and walking but what I'm getting at is I can now only manage half the house work and I am absolutely exhausted (that was unheard of before my op) I'm only 7 months post op so still quite fresh I suppose!!  But I work 30hrs, get home and the energy levels are draiiiiinnnned.., it's crazy what happens... I went into it thinking positive thoughts, im currently managing my own bouts of depression and ache/uncomfortableness on the side of operation.. my insides no longer feel normal, I feel odd but I cannot describe it... I am 100% thankful to be alive... of course I am but this zero energy level is getting me down!!  Hugs to all going through the same things.. we will get through this guys!! 

  • I’m so sorry to hear you’re going through it also. I definitely feel like I have a different body now, in the way it feels and what it can do, compared to before, and I’ve only recently started to accept that. 

    What has changed for me since I started this post is:

    I now have an occupational health assessment for work that recommends regular breaks and an easier shift pattern. I had to kind of take back control in my workplace and that has helped a lot.

    The concept of having control is way more important to me now, which I suppose is to do with the powerlessness feeling of getting cancer. 

    I’ve also stopped running (for now at least) and am doing more yoga and cycling, gentler activities and that has helped with energy levels. 

    Last week I got back clear scans so that has also helped. 

    I have also returned to therapy albeit a different kind I’m experimenting with (EMDR). 

    My not talking approach for last four months didn’t help me, especially during the crazy build up to Christmas. 

    Lastly, writing this post was a form of reaching out and it’s helped me so much, so I can’t thank you all enough. 

    All my love and hopes for you all xx

  • I'm so pleased for you regarding your clear scans! That's great.  It's nice to hear positive news. 
    keep going , it sounds like you have got it all sorted inside your head.. take each day at a time!  This group is great. I've been on and off since before my operation last June last year 

    I wish you all the luck and strength in the world 

  • Thanks so much, and all the best luck to you also xx

  • I’ve been in a similar place energy-wise, and I found that simplifying my diet and cutting down on processed stuff helped a bit. Someone I know swears by natural supplements, and they mentioned finding some relief with delta 8 distillate wholesale—mainly for managing stress and mood. It's not for everyone, but just flagging it in case you're open to trying different things alongside what your doctor suggests.

  • Can totally relate. Zero energy after full nephrectomy 21/6/24 

  • Doesn't sound foolish at all. Your reasons and concerns are 100% valid .  Sorry to hear that you're feeling like this .  I feel the same. I dont exercise, but always active and pottering around. I work 4 days 9-5, my energy levels would always be high, now I wake at 6am, don't sleep well (down to menopause) then by 12 my energy is zilcho.. but stil have the remainder of my day  to go, once home I cook dinner healthy unprocessed foods and then feel exhausted by 8pm.  I definitely think there is more to kidney cancer after long term than what they let on!!! I don't think there is enough research that's going into long term side effects etc  I'm 44 but have less energy than my mother aged 70! Crazy . Hope you're doing ok. We're always here. I don't come on often as I sometimes feel quite low and try and brush my cancer under the carpet to forget about it... but I suppose that's not what we should do! 

  • Thanks so much for your reply. I'm sorry your energy too is poor. FYI it's been a while since I posted the original thread and a few things have changed, all for the better, mostly. I don't feel depressed atm. I'm so much better at managing my fatigue since using the Macmillan Fatigue Diary. I've given up even trying to run and have chosen a more holistic low impact way to fitness and living with cycling & yoga. Work however, sucks, and I'm reducing hours and looking for something else. Even though they've been supportive, customers don't know I've got long term fatigue, and even managers etc forget sometimes and ask me to do stuff. I'm at the end of it really.

    Anyway, thanks so much for the reply and hope your situation improves. Isn't it strange that there's no real support for long term fatigue (apart from Macmillan)?

    I have put all my info into Chat GPT and that actually came up with good advice, can you believe?