Can anyone tell me, what the progression of side effects can be…..if you get very few to start with, as time goes by is it likely to stay like that or do people find they actually do progress….Or may be only on second or third IV dose….or never change from original ones…..would love to know all your impressions…thanks
My view. If you get few side effects, then it's likely to stay like that. Although it may take 3 months for the side effects to manifest themselves. But then, an option is to stop or change treatment to manage everything appropriately. If after 3 months, everything going well, then your body has probably adjusted to it, and all good until the decision is made to stop.
I'm not sure I'm with you associating "progression" with immunotherapy side effects. I don't think it's like that - but some therapies are, I believe, like RT and some chemos.
I view cabozantinib on a different level to many other immunotherapies. Not as universally well tolerated as nivolumab. Where did I get that view from - I'm not sure! Reading here perhaps, more frequently used as a 2nd line treatment than a first?
Now let me declare my interests - I've not been on cabo, but have been on nivo and it worked well for me.
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