Treatment decision

Hi Sweet21Pea

I'm sorry to read your news! It must have been a shock, and I can understand you reaching out to see what others think on here.

I recall another person in this forum receiving similar news recently, having a very rare cancer. Because of this, his hospital referred him to Guy's hospital in London. They are supervising his treatment.

I wonder if you could ask to be referred to a 'specialist' hospital for a second opinion? One which may have more experience in dealing with your particular cancer? You have nothing to lose by asking! And everything to gain, if your current team can't offer any treatment.

But you may get good news on Thursday, and they may have a treatment plan to offer.

I will keep my fingers crossed for you!

hugs

Candysmum

I suggest you should explore options and make an informed decision.  I don't have all the info of course, but just going to palliative sounds a bit defeatist.   But equally no one knows how treatment is going to sit with your body.  It might be fine, awful, or result in over-riding side effects. 

I note you say you feel everyone in your team thinks palliative is the way forwards.  Perhaps they are just numb with the diagnosis, same as you. 

Ask about trials - you never know what's coming up on the horizon.  And if your hospital isn't on the radar you can always check yourself, online. 

Ask lots of questions, don't make any immediate decisions, take your time to think about it.  There's no wrong decisions.  You're looking for the one you feel comfortable with.  Let us know how you get on and good luck. 

Hi sweet pea , 

I am the man with the rare cancer haha . It’s never nice to hear you have any cancer but a rare one with limited options is a real kick in the teeth . There is same great people in here full of much more knowledge than me . Namely the two that’s already commented . I read everywhere that nothing works on my cancer but I’m still trying . And I had some success so far so fingers crossed it continues .