Scan anxiety, poor feedback and waits

The waiting is a right pain, along with any uncertainty.  I certainly struggled with the "thinking about it all the time".  I knew it was a problem,and wanted to get it out of my brain, but easier said than done.  For me, I found that time helped.  I got into a routine, I was fortunatte to get good results and gradually it became less dominant in my life.  But it took months.  Hopefully you might find the same.  

Totally understand how you are feeling and your feelings around this are valid!!!! No need to apologise. how are you feeling today? Do you have support from family? 

I myself have been in a bad place the past 3 weeks,  had my CT scan on 1/10/24 still awaiting results but I'm seeing my consultant on 30/10 (1st Ct since procedure ) so fingers crossed should be ok, no news is good news right?!?!?  .

I feel Empty, emotionally drained, mentally and physically tired.  I had my cancer removed on 21/6/24 full nephrectomy left kidney.  I told a nurse at gp surgery the other day that I brought in a urine sample as I felt I had a urine infection... especially that my urine had not been dipped for 4 months... she totally blanked what I said... she said "oh this appointment is for your hypertension review" I don't require a urine sample.. I said "oh ok but as I've had ca of kidney and I dipped it myself at home showing lilac on the first square (if anyone knows how dip tests work you'll know ) to me that showed possible infection, but no she said it's ok I'll discard the sample!!!!!!!!"  I'm sorry what!!  I walked out feeling down, depressed she was not empathetic at all...I don't feel she really listened. I went into my nhs app later that day and she had written and "coded depressive mood" ... yes depressive mood and no mention of what I said about my possible urine infection..as a nurse she was not empathetic or listening to what I said!!!!    I'm currently feeling like you are very much left to your own device's, especially when you don't require treatment and that's SAD!!! Because whether I have not had to have treatment I've had exactly the same valid feelings inside from day dot!!! When you hear those words "I'm sorry but you have cancer" it sucks!!!!!  Rant over sorry 

I know exactly how you feel. Last year I had to argue with the doctors receptionist over my request for the blood test needed just before my CT surveillance scan. She said she needed proof ! I said read my notes I have had kidney cancer. They really don’t care. I told my kidney nurse and she was fuming. As if I would book a blood test just for the fun of it. When it was done, it was done incorrectly and I had to go back and have it done again! 

It's very frustrating. X

That’s awful!!! I’m sorry you had that experience. Is it worth putting in a complaint? 

I don't even have the energy for it if im

being honest x 

How did you get on with your Oncology meeting? x

Hi Cilla, how are you? X

It went well thank you, CT all clear, there is a small nodule on my lung, they don't know what that is, but whatever it is they didn't seem concerned about it, I think we can have nodules everywhere!! I'll now be monitored for the next 5 years with CTs etc. x thank you 

Hi Jd19801,

I am good thanks too. The lymph node picked up in my gall bladder (4mm) is being monitored. I will have another ultrasound next September, but my gastro consultant said it’s just part of the aging process and it’s nothing to worry about. She said they will just take my gall bladder out once it reaches 5mm. The trouble is once you are under the radar they tend to monitor everything more rigorously, well they do for me! Every scan I have finds something else, so I am under Gastro, Urology, Cardiology and Rheumatology ha ha! My kidney scan is early Feb. I am hoping there’s no further surprises there but who knows eh !

My con surgeon ordered follow up PSA test. My GP said they wouldn't give me one without a doctors appointment. Frankly they are cretinous.