Does anyone else have to A) book their own CT scans and then B) wait an eternity to hear the results?
Following the drug trial, throughout which My Husband was treated absolutely wonderfully with all the I's dotted and T's crossed.
However, the drug trial failed to show any further progress, so He was taken off - and put on Cabozantinib.
This is fine - but subsequently, from (April 2023) I've had to chase every single scan request and actually book it myself. Results - well We have to wait between 6 to 10 weeks for the results. For example, a scan on 25th June - We still have no feedback from.
Surely - it is the only yardstick everyone has on the progress of the cancer and effectiveness of treatment. We hang all our expectaions and prayers on these results. Am I being too harsh to expect anything other that this feeling of near abandonment?
