Hi there
I’m currently going through tests, about a month ago I went into my local urgent care centre with really bad pain in my lower back on the left and blood in my wee. They said it was suspected kidney stones but couldn’t test my urine properly because I was on my period. I was put on antibiotics and referred for an ultrasound. I had this ultrasound on Thursday last week (23rd nov) the drs called me Monday (27th) and told me they found a mass on my left kidney. I was referred for a ct scan and had that on Tuesday and then they called me again today and said I have to have a ct scan on my chest. I’m not sure why, I did ask but I can’t remember what they said.
I have the nhs app and was looking at my notes because I was telling my sister in law about the full blood test I had and they came back as normal. I then saw my ct results and said probably RCC and the mass is around 6/7cm.
I’m panicking and worrying, I’m a mum to 3 children. I’m nearly 33 and have a 12 year old, 9 year old and nearly 3 year old. I don’t want to leave them
Just an update, I had an appointment with the specialist today. They have decided to take my whole kidney out, the mass is taking over most of my kidney and they don’t think it’s working anyway. It will be keyhole surgery and done by a robot, they said it will be in about 4-6 weeks
Just the same as me - I had the same scans, same time scales. Kidney removed using a robot hand. I had it done at the end of May and I’d say, bar one or two aches and pains, I’m more or less back to normal now. Im in my 60s so hopefully you’ll get back to full health quicker than me. I had my follow up CT scan after six months and that didn’t raise any concerns so hopefully it’ll be the same for you. Good luck - fingers crossed everything goes well.
Hi Tryingtohope,
I hope having the meeting today has helped you, now you have a treatment plan. It is very frightening at first, but it will be okay, robotic surgery means you will recover quicker and age is on your side. It is amazing what they can do now and we can all manage with one kidney it seems.
take care x
I’m glad you’re practically back to yourself! They said it hasn’t spread anywhere just in my kidney, so that’s a positive
thank you
It has helped more and I’m not just sitting and waiting to hear anything.
thank you x
I have my pre op on Friday morning, the hospital wanted me to go tomorrow afternoon but I couldn’t get childcare that short notice
Had my pre op yesterday including an exercise ecg. Having a ct scan tomorrow of abdo and thorax to see if anything changed or spread. Pencilled in for surgery on Monday.
That’s not long to wait! I’ve got my operation on 1st February to remove the whole kidney I had a phone call today
All in al it’s about 7 weeks from original detection
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