Mets after successful removal

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hi all,

I had a successful partial nephrectomy last December with good margins and put on the watch list. A few weeks ago I started to have a sore, itchy right nipple and then about a week ago I found a lump under it (I’m a 51 year old male by the way) I’ve been to see my GP and he has ruled out a Lipoma and a cyst and was worried enough to refer me for an urgent scan. Has anyone heard of kidney cancer mets spreading to the breast, or has anyone else been diagnosed with it? 

  • Hi Byron, whilst I don’t think I can help you with your specific question, I just wanted to acknowledge what a worry this must be for you. The best advice that I can give you is to try not to go down the rabbit holes of what if.

    After I was diagnosed and before I had my nephrectomy I received a letter telling me that they had picked up some kind of breast abnormality on a scan. At first this really concerned me……..but I tried to  calm myself until I was given the results and it turned out to be a cyst………I can therefore empathise with your feelings.

    Take care and let us know how it goes.

    Jules x

  • Hi Byron

    I hope this turns out to be something benign for you. It is difficult, having to wait for scans, and I wish you well.

    You asked if anyone else with kidney cancer also had mets in the breast. Evidently, it is unusual for it to spread to the breast, but in my case, it was how my kidney cancer was found....after a visit to a dermatologist with a very small lump on my scalp, and to the breast clinic also with a very small lump. Both path lab results showed kidney cancer cells.

    I was diagnosed in June 22, and have been receiving immunotherapy ever since. This is working very well for me, and there is now no sign of the breast tumour on the scans, and I can't feel anything either. I look, and feel extremely well, and am living my 'normal' life, with monthly trips to the hospital for treatment.

    I hope you have good news from your scan! 

  • Thank you for your reply, it’s difficult to not worry, but I now at least have an appointment for outpatients to get to the bottom of it, it knocked me for six when I went to the gp and he immediately referred me back to the hospital , I was secretly hoping that I was being paranoid.

  • Thank you for your kind reply, I’ve got an appointment now with the breast clinic so hopefully I’ll get to the bottom of it, I’m so glad that you are responding to treatment.