Help with treatment

Hi, the side effects from immunotherapy can vary from patient to patient, mine have been mostly minor (itchy skin & blocked sinuses), maybe your husband is feeling overwhelmed by all the information they gave him, it happens to us all, but with time you learn to deal with it. I’m on Nivolumab so can only comment on that, if you have any other questions feel free to post & someone on here will know the answer 

Hi I'm on immunotherapy (nivolumab).  I've been fortunate not to have the standard side effects (sickness, diarrhoa, itching).  After I started the treatment I felt "normal" again until the fatigue hit and the weight came piling off again and this was due to too much inflammation in my kidney tubules impacting kidney function.  Best speak to your team and get it checked out.  

Hi there Phil M  Your post caught my eye because you mentioned blocked sinuses.  I have this!  It came on a few months back and we reckon it's caused by the nivolumab.  How did your team attribute this symptom to the nivo if you don't mind me asking?  I'm waiting for a nasal endoscopy to investigate but I'm not sure it will add anything to the equation apart from confirm my symptoms.  

Hi Mmum my team didn’t seem too concerned so I went to my GP who prescribed me a steroid nasal spray that sorted it out after a couple of weeks, it’s called Avamys (fluticasone furoate) 27.5 micrograms , mine were that bad that it was stopping me from sleeping but now I only have to take it when it starts to feel blocked up

Ah interesting thank you.  Mine isn't that bad.  It comes and goes and at worst it's just blocked (both nostrils!) and I sound like I have a cold.  None of us are concerned about it.  Onco wants to do the nasal endoscopy before trying a spray although I've got fed up a couple of times and tried a nasal spray (Beclometasone) which wasn't that productive.