Waiting and wondering

Hello to the lady with the great name ( I too am photo mad)!! Welcome to our friendly group….but the group we would rather not like to be a member of

This waiting game that you are experiencing now is the worst part because you are in limbo without any concrete news or a plan. Lots of us have experienced this, so do feel free to express how you are feeling.

When they found my mass, I was given a choice of having part of my kidney removed straight away or having a biopsy. I had the biopsy and it was confirmed as cancer. I ended up having my whole kidney out in the end. 

This whole experience will have come as a dreadful shock for you and it’s something that you will need time to get your head around. Cancer can be a scary word and particularly when you currently don’t know what’s going on……….but once you know what’s going on, I am sure you will feel less anxious 

Do keep in touch and ask any questions that are bothering you………also you could give the macmillan support line a ring.

Take care, big hugs, Jules x

Hi, I’m new here too and feeling very much in limbo. I’ve had an ultrasound which found a mass in my kidney. I kept finding blood in my urine and my GP referred me to the Urologist. He told me about my cancer and ordered CT scans of the chest and abdomen to see if it’s spread. I’m waiting for my next appointment where I should find out the results of a multidisciplinary meeting regarding my treatment. That’s what I’ve been told anyway. 
I hope you get some answers soon and that you feel less anxious. 

Hi,

The wait is terrible.   I have a first scan coming up following immunotherapy and it's kind of paralysing......waiting for it and then the result.

I am trying to organise some low key things to look forward to e.g. going to cinema to get through it as best i can

Xx

Although it is good that the system can and does react very fast to certain types of patient in an odd way that adds to the shock. There isnt much thinking time. It can come down hard and very fast. It takes time for us to "catch up" and process the event. The body does not know surgery might have done us a lot of good. The body only knows bits are missing and we have huge scars and tissue to heal. I can see why it takes months even in a good case to get back in balance. in my case less than six weeks elapsed between the very first hint something was amiss and full on radical nephrectomy. I still scarcely believe it happened ! But I do know that any waiting is very difficult. Good luck and God bless. Please let us know how things are going.

Hello madknitter, I hope that you will find friendship and support from this group.

I know that everyone is different but I remember when I was waiting for the results that you are waiting for and the results of the MDT, it was hard not knowing what was going on, so my heart goes out to you.

Once you know the outcome and have a treatment plan, I am sure that it will feel more at ease, even if it is cancer…..the feeling of being in limbo is not nice.

Do let us know how you get on.

Love and hugs  Jules x

Hi Jackie,

I am sure it must be hard waiting to see if the treatment has had a good effect for you. You seem to be trying to stay positive by organising some things to look forward to, which sounds a great idea.

Wishing you all the very best and do let us know what your results are, if you feel able to.

Take care, Julie’s xx

Hi Madknitter another fabby name :-) Definitely you are in the "limbo" stage.  We've all been through it, so don't struggle alone, post or rant on here.   We will always help or share coping strategies if it gets too tough.  I'm not sure from your post whether you've had your CT scan or waiting for the results?   Hopefully the latter.  It's normally 2-3 weeks.

Hi, thanks for information on how long it can take to get the results from my CT scans. It will be easier to put them in the back of my mind and concentrate on other things. I’ve set myself up with a mission of sewing animal toys for all the young ones in the family for Christmas. 
Hugs and best wishes to my new friends in this group. 

If they put their minds to it it can be instantaneous. Day or two max. I had one and two days later Urology in diff hospital rang me to book consultant appointment based on the result.

Hi there,photography is my biggest passion,it’s a good way of switching off from things at times. I gage my urologist appointment tomorrow morning now. Any questions you think I shoukd ask? My mind is on 100 mph loop