RECOVERY FROM RCC

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Latest scan shows my 2 lung nodules to be stable at 3mm so Oncologist has stopped the Suninitib tablets until further notice however the treatment has caused Pericardial Effusion which is a build up of fluid around the heart. Waiting for an echocardiogram to determine the next course of action but it looks I could have angina as well caused by the Anaemia but hopefully its all treatable. Not much energy yet I still get out of breath doing anything physical but its nice not having to have a running battle with bleeding fingers

  • Hi  

    I don’t have kidney cancer but I noticed you hadn’t had a response. I think it’s quite common for treatment to lead to further problems. I always say I was healthy until, they found my cancer. I hope this is treatable for you and that the treatment itself doesn’t add further complications for you. I guess it’s the price we pay. 

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  • thanks for the reply, I wasn't expecting a response I just thought it would be useful to the group to post anything I can about targeted therapy as there aren't a lot of posts about it

  • Sorry to hear that mate. I was on pembrolizumab (sp), and it gave me two pleural effisions on my lungs and a pericardial effusion. 

    The pericardial was small so they basically left it to "heal" itself. I still have breathing issues but my lungs are much better. It certainly take it out of you, I get oramorph to help my breathing, especially at night time. 

    I get check up every 3 months for the time being but its a long long road, cancer free but side affects of the treatment to stop it coming back has done more damage than the cancer did.(Kidney RCC)