Hello peeps, newbie to all of this!
Visited doc last December for unintentional weight loss (after chronic UTI, fevers and night sweats). Had lost 1 stone over 6 months, down to 7.5 stone. Usual tests arranged, diabetes, thyroid etc, but examination revealed a lump in my right side so urgent referral for CT scan. That revealed a large simple clear cyst of 5cm and a kidney tumour of 1.5cm on the other kidney. Active surveillance, 2nd CT was July this year. Phone call from local hospital was 'almost certainly cancer', wait for MDT meeting and report. 2 days later I'm called in to hospital where they then say MDT team is more concerned with the 'suspicious' growing cyst, now 5.5...and also the sudden manifestation within the 6 month wait of another 3 'masses', one under the large cyst and two on the tumour kidney. BUT....active surveillance for another year. Meanwhile, in the last 7-8 months since 1st scan and weight check I've lost another half a stone which they tell me can't possibly be due to small tumour, only advanced cancer. I can also feel the cyst uncomfortably when i bend or twist...probably because I'm now so skinny at 6.13. The CNS assigned to me took me to one side afterwards and said to go back to GP about weight loss, but if I start peeing blood or have pain in right side to contact her directly, not GP! I'm very confused, but also concerned; if I carry on losing weight, will I be too thin and weak for the ultimate surgery when they decide to do it? The fatigue has been quite brutal for well over a year now, as has the muscle loss. I'm 60, 5'6" and was fit and athletic before all this.
Thoughts please?
