Im new. Hello! I was diagnosed with a tumour on my right kidney 3 years ago but chose active yearly surveillance. Each year its grown 1mm until now. Last week i met my surgeon for scan results and told it had grown 4mm to 26mm! I was shocked. Not what i was expecting and really angry with my body for letting me down. Now ive been given a deadline of next Wednesday to make up my mind what i want to do-further surveillance, biopsy or partial nephrectomy via either open, laparoscopic, robotic. I definitely dont want a biopsy with the risk of Seeding. I dont want robotic with the risk of Arcing and burning my tissue, mechanical failure etc. and any surgery runs risk of infection, nerve damage and other complications plus the dread of recovery not going well. My surgeon says since its grown faster in last year its likely a growth spurt again. Im at a loss. Ive contacted the urologist who i used to be under at a previous hospital for advice but he says i should have it removed as its growing anyway and the surgeon im under is the best for the job (he was trained by him) but Im sceptical of everyone. I want it all to go away so i dont have to make up my mind and just go back to how things were. Its a nightmare!! Any advice is welcome. You lot have been through it and i value your thoughts. Thank you x
Hi and "welcome". First my declaration of interests! I'm in the metastatic ccRCC category so surgery passed me by. Definitely get it removed, I'd say. There's loads of people here with positive post nephrectomy stories and statistically survival is longer if caught early and before it has a chance to spread.
I had a biopsy. It was no issue and not painful.
Hiyah, last October I had an 8 cm cancer removed including my right kidney and adrenal gland, I can honestly say the surgery saved my life, I later found out that the cancer was/ is aggressive, it was removed robotically and I’ve every praise for the consultant and his team, unfortunately I now have secondary cancer in both my lungs and starting immunology , had this cancer been found earlier I feel I would have had removal if recommended, I’m 70, it’s taking longer to recover, but I’m good, well, for now, the futures certainly uncertain, my operation was definitely 50/50 but that’s the extreme, if you have that op you’ll be ok, I wouldn’t be here now without it, good luck
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