Help! I need to find toothpaste that doesn't make me cry! Just started 2nd line drugs. Everolimus and Lenvatinib. I had mucositis with Axitinib before and its going to be a side effect of these too. My dentist prescribed a high fluoride toothpaste but that stings & I tried Zendium but that stings too. There are lots for sensitive teeth but I haven't found anything for a sore mouth. Does anyone have any solution?
Best wishes to you all! x
Hi , I use a toothpaste for sensitive teeth ,like you , couldn’t find anything else, when on treatment. The hospital give me corsodyl on prescription, which I dilute with water.
They can also give you a sachet of gelcare, you dilute with water and use as a mouth wash. It always helps to keep on top of my sore mouth.
Hi Deblorraine
Thank you for your reply. Sorry to hear you are a fellow sufferer!
I do have Gelclair & I use Caphosol as a mouthwash. Corsodyl is fierce! It's the toothpaste I just can't find.
Take care and thanks again x
Hi, not sure if this is the correct advice but I found children’s toothpaste (4 year or 7 year) isn’t as painful to use but still does the job!
Hope this helps??
Hi Davethedog
Sorry to hear of your diagnosis and I hope you have a good quality of life. I will try the children's toothpaste and thanks for the tip. Wishing you the best we can all hope for x
I've had 3 rounds of EC and my mouth felt like it was burned, taste changed too - at one time all I could taste was pickled herring (which I love but not 24/7!). I use Biotene or Wisdom toothpaste for dry mouth plus their mouth gel and mouthwash - it has really helped! I have gel by my bed and use it if I wake up because of my dry sore mouth. There are other brands as well. I also suck on a mixture of mints or take an icelolly/ice-cream when needed.
I used the BioXtra Dry Mouth mouth wash but I didn't feel it relieved the dry mouth. They also do Mild Toothpaste for dry mouth sufferers, £3.79 for 50ml. Not tried it personally.
Have you searched the Head and Neck cancer group - I see they discuss this as they suffer big time with sore mouth. Ora nurse is suggested. Here's the link to the group: https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum put "toothpaste" into the searchbar.
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