Can’t cope today

FormerMember
FormerMember
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I had my pre op assessment yesterday and due to my vertigo issues wanted to chat to the anaesthetist to allay my fears. Unfortunately he made me feel worse. After chatting about helping with my vertigo he told me that I have an injection in my back to prevent extreme pain. Then he told me that 1 in 10,000 people have mobility issues after having this done (like an epidural).  So now I have the choice of excruciating pain or the possibility of mobility issues. What a crap choice.  I really don’t want this operation and keep crying today. Have chatted to a psychologist which was good but he can’t stop me feeling absolutely petrified. I am soooo scared it’s painful. Anybody else feel/felt like this?

  • Hi  I'm actually from the breast cancer group but as I was going through the posts with no replies I came across yours and really felt for you.  

    I had an epidural twice when I gave birth to my children and it was brilliant and no mobility issues afterwards.  Doctors always have to give you the statistics and worst case scenarios as they need to protect themselves from being sued.

    Not sure if this helps but by replying to you it will also bump your post up to the top of the list where someone from the kidney cancer who feels able to help might see it this time.

    Wishing you all the best with your surgery x

  • FormerMember
    FormerMember in reply to GodWilling

    Hi,

    Thank you ever so much for replying. I thought when I joined this community there would be more interaction as I really needed the support. My family are great but thought it would be good to hear others experiences.

    I have spoken to my oncology nurse, she was quite supportive.

    thank you and best wishes x

  • Hi  I'm the community champ for this group so am coming on here to welcome you.

    As  says, lots of women have epidurals when they give birth n also they have to tell you the worst case scenario. It doesn't mean that's what will happen!

    Good luck with your surgery. Do let us know how you get on.

    Sue

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • You are very welcome .  The breast cancer forum is very active but I don't know about the kidney cancer forum.  I guess there are probably many more of us with breast cancer.

    It definitely helps a lot to speak with others who are going through something similar to you.  Maybe try posting again in a number of different places or replying to someones post and starting up a conversation that way.

    When replying to someone use the @ before their name and then select their name from the drop down box.  That way they should be notified that they have a message.  So to reply to me you would do @GodwWilling and when you see the drop down box you click on my name or icon.

    Really hope you connect with someone on here and get support from someone going through similar to you.

    Wishing you all the best with your treatment x

  • You could also post in the Emotional issues group 

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Hi Freckles 16, I hope that you are feeling a bit better. I have some experience of vertigo and know how horrible it can be. I really felt unmoored and unable to trust my senses. Are you getting any help with the vertigo?

    I am sorry the aneasthetist made you feel worse, but as others have said, they do have to get informed consent which unfortunately means telling you all the bad things that might happen however  unlikely they are. I have had three cesareans under epidural. I remember worrying about losing mobility afterwards but it was fine every time.

    Good luck with the op. If you can, do let us know how you got on..

  • I've had labyrinthitis twice so know how you feel 

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to FormerMember

    Hi Freckles 16.

    I haven’t got vertigo however I was quite worried about the spinal injection.

    having not had kids it seemed quite scary.

    my injection was given whilst I was sitting up, with feet on a chair lifting my knees higher so I could lean over onto them whilst  the injection was given, after that your laid down given the sleeping has and I don’t remember a thing until the ward.

    Try to focus more on the need for it and that 9999 people don’t have an issue x

    my op was 6 weeks ago .

  • FormerMember
    FormerMember in reply to FormerMember

    Hi, thank you for your message.

    injection was exactly as you described, I don’t even remember laying down as had a sedative just before it. Woke up in ward too.

    I am now three weeks post op, still uncomfortable but taking a day at a time.

    Did you have your kidney removed like me? How is your recovery going? Did your wound open up?