Hi,
Firstly I know negligence is not a comfortable subject and many of you may have had great treatment from the get go. If so , please don't feel the need to criticise because I am one angry person and I am not finding huge support. I won't bore you with the shambles which was my treatment locally, just that the missed diagnosis was only discovered on two scans, several months old ...found by a Rheumatologist! Bizarre. Local hospital then lied further, did nothing but claimed to have referred me to be evaluated by a Multidisciplinary team. They did no such thing but told me MDT decided to do nothing for 6 months. This was untrue. I sought referral elsewhere and had radical right nephrectomy. Cells were Grade 4. So cancer diagnosis only discovered by chance and then if I took their word I would not even be being reviewed until November!
My family were confused and angry feeling I was either lying when I said it wasn't cancer or lying when I said it was. I believe I had 6 admissions to local hospital in the earlier part of year... then surgery elsewhere, then one further admission, so eight in total...lots of missed opportunities. My local hospital has been in special measures.
Have sadly found that this topic is not one any support agency wishes to talk about.
Now I know how aggressive the tumour was I feel justified in taking action. Without luck and a friendly Rheumatologist I would still be suffering dreadful symptoms and with no diagnosis. I was fobbed off with everything from ' women's trouble' to constipation.
Wish me well as I wish all of you well. This is not about money, it is about accountability.
