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We had some good news on my son's PET scan yesterday which shows complete metabolic response but then in his aavd infusion yesterday he had a bit of a reaction to the Dacarbazine. His face went blotchy on the cheeks and then he had some mild heart palpitations...
Hi All, It has taken me well over a year to decide to do join these forums, never one to rush into things, clearly. It is now just over a year since I was given the news of being in full remission from Stage 4 Nodular lymphocyte predominant Hodgkin...
Hi Everyone, I’m 32 F, I was initially diagnosed with stage 2 Hodgkin’s lymphoma but after a closer look they have found a 8mm pulmonary nodule and have now been put down as stage 4. I’ve opted to start BEACOPDac over ABVD, just wondering what people...
Hi there just finished treatment 4 cycles off escalated beacopdac wandered if people knew how effective this usually is
Hi Everybody, I was diagnosed with stage 4b Hodgkin’s in January. I’m currently going through escalated BEACOPDac. The whole thing has been very intense! I am looking to connect with people who have gone through / are going through a similar experience...
Hi everyone, I wanted to share something that’s been on my mind as I’m about to start my last cycle of ABVD. I’ve been reading a lot online about diet, especially things like “carbs feeding cancer” and fasting, and it honestly made me really anxious...
Hi everyone, I hope you’re all doing okay. I just wanted to ask for some advice and reassurance. I have stage 2B unfavourable Hodgkin lymphoma and I’ve completed 2 cycles of BEACOPP and 1 cycle of ABVD so far. Recently I’ve been feeling a heaviness...
I have had two injections of Pembrolizumab since discontinuing AVD after five infusions. Generally I feel better than I did with chemotherapy but the side effects seem to be less predictable: I've had back ache,sciatica-like pain, swollen gums,enlarged...
Hi all, My boy is really suffering with constipation. He is taking 4 sachets of movicol yesterday and today but is in so much discomfort and suffering. Has anyone else had this? And did it resolve on Movicol eventually? Help
Was diagnosed with HL in October 2025 after a misdiagnosis of Stage 4 lung cancer and probably a year of low immunity, other health problems and a range of seemingly unconnected symptoms. Was almost relieved to learn it was HL because I kicked that out...
