Beacopdac

Hey Sh121...I'm still in the middle of it so can't speak from personal experience but I've read SO MANY scientific papers on it - on paper, it's brilliant. It's usually more effective than ABVD and you're less likely to relapse over the next few years (not that relapse is particularly common with Hodgkins). 

How many more cycles you got left and thanks for reply hope goes well 

I'm in the middle of number 3 now but had my PET3 which showed complete remission. One more in January then hopefully(!!) done. Might need a bit of radiotherapy at the end because the residual stuff is quite big but the consultant doesn't seem too bothered about it...

Thanks Sh121 :)

Sorry what you mean by residual stuff bit bad at all these medical terms + good your consultant is really positive

Anyone else had any experiences or feedback from it 

Hi Sh121 'residual stuff' is basically some small active areas that has not been completely eradicated using the chemo - this can be zapped with some Radiotherapy.....

Some small areas can also be 'suspicious' so as a belt and braces approach these areas can be zapped. 

Thank you very much have you heard many stories/experiences with escbeacopdac 

to widen your support platform you may want to check out Lymphoma Action. Lymphoma Action is the main UK Lymphoma Specific Charity who have lots of good reliable information, videos..... basically all things Lymphoma....... pre, during and post treatment.

They run various Support Platforms… I highly recommend these groups as this will widen your support base and there is nothing better than ‘talking’ with others who have walked or are walking the same journey.

They also have a great Buddy Service where people can be linked up with someone who has walked the same treatment journey.

The LA helpline is open every week day from 10 till 3 on 0808 808 5555. This is a safe place to talk things through and get support.

Hi Sh121 - exactly what Mr Highlander (absolute legend) says. Hodgkins has a habit of leaving scar tissue behind and so in most countries, if the residual mass is still more than 25mm at the end of treatment scan then they will often do radiotherapy as a belt and braces approach.

My understanding is that in Scotland, they actually tend to do radiotherapy anyway (again as a belt and braces) as part of their usual protocol.