Hi I had Hopkins lymphoma and have had chemotherapy since the beginning of march I had a scan after a couple of phases and it showed I was in remission ,I finished my chemotherapy last Thursday but now I really don't know what happens next
Hi again Stokebloke21, well done getting through your treatment.
Each hospital will be different but it’s normal to have regular bloods done to check on how your immune system is recovering as the accumulative effect of the treatments on your body will take time to work it’s way out so you do need to initially assume that you are still open to infections so be carful.
You would normally have a clinic appointment a few months on….. I was always given my appointments before I left my clinic.
Basically you get on with life…. for some this can be initially challenging as you are moving on from what has been part of your life 6 months.
You may find it helpful to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment milestones.
Keep well and keep dropping in past the Community as there will always be someone that is standing looking down the treatment tunnel and is so anxious but your support for them would make the difference in how they get through.
Hi Stokebloke21 ,
I’m in virtually the same position as I finished 6 months of chemo last week and my interim scan showed complete remission.
I have another PET scan in 4 weeks to confirm that I’m still in remission following the full course of treatment and then a follow up appointment every 3 months for a year.
But like others have said, it likely varies from hospital to hospital.
I am in the same place Stokebloke21 I am today on the final day of my cycle. This whole experience has made me so strong, mainly because I was feeling so much worse before chemo started. I thankfully have not had that many bad symptoms. I feel very blessed that I am getting through this as my mid treatment scan showed that the cancer is going away. I feel very strong coming through this but I wish I had someone to share it with and that’s why I’m here. I feel like i have put on this ‘logical’ cap since treatment and I have not processes anything until now. Likeliness is I will be infertile after this… I’ve been thinking in recent years that I don’t want children but I’ve been forced into that potential decision as I chose treatment first with no time to freeze my eggs.
I’m struggling… my sister got married in Spain this year and I could not go and now she is 2 months from giving birth. My sister is the closest person in the world to me so it’s hard to not share in her happiness and not be able to do the supportive things that sisters do in this situation. Just feeling a bit down today…it’s crazy how much of this is emotional because I have not been feeling too bad. Just wanna spark a chat with someone x
Hi Kul308
thanks for reaching out. Am really riding the rollercoaster right now and feel very high and very low at times. My treatment is over and I have scans in a few weeks but I’m having trouble with integrating back into life…
what is your situation?
Hi. I had Hodgkin lymphoma in 2015. Did chemo etc. then had thyroid cancer. I am in remission for everything. The hardest part of the journey is the ending. It brings joy but all of your hectic schedules abruptly ends. Not that you miss what you went through. It’s just a weird feeling. You become so used to a schedule and not feeling well. It took me a long time to fully recover. But you can do it. We all have that strength for sure. I hope you’re doing well!!
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