Back Pain - In Remission

Hi Manos, good that you have put a call in, aches and pains can indeed come and go.

I find the post winter time the worst and as the summer months came in and I became more active the pains started up but after a while they go again. Over the past few months I have had dreadful neck pains..... went and bought new pillows last week and the pains have now gone

I think we can’t overestimate what our body go through during treatment and aches and pains can be magnified by the ‘what if?’ magnifying glass

Hi Mike,

Thank you for your prompt reply. I think you are right and to be perfectly honest, the days before this pain started, I was indeed pushing my body with a lot of strain by doing a lot of hands on things; from doing the garden, washing the car to playing ping pong! Sometimes, the simplest explanation is the correct one and I also need to take into account the fact that my body needs longer to recuperate from pains such as the ones that I experience now.

Thank you once again for being here

Manos 

Hi there, please do  wait to speak to your team and check.

My hubby had stage 4b hodgkin's lymphoma and was declared technical remission in March, he had continued back pain and at times shortened breaths and still fatigued. We went to the hospital to query with his team after calling them and they discussed things with us, and ordered another PET CT.

Unfortunately we found out last week that his cancer returned, it was 7 weeks between scans so please do just check with your team to be sure.

It's easily put as  " I did xyz and that has caused it" - that could be true but still worth checking to keep worry at bay. 

Best wishes 

Hi Gwillis, unfortunately relapse can happen, but frustrating to hear that this has happened to your hubby so quickly.

I have a rare skin NHL and over my 22 years I had multiple relapses, actually it took 17 years to hear the word full remission actually used.

The most important thing to understand is that there are a good number of 2nd and 3rd line treatment on the shelf ready to get this back on track. We have had a number of folks over the years experience this bump in the road so let’s see if they are still looking in.

Where is your hubby getting treated?

Always around to help out as best as I can.

Thankyou.

Due to his work he was based in oxfordshire on weekdays and home down south at weekends therefore the initial testing last year and diagnosis was in the Churchill in Oxford, and we transferred treatment to derriford in Plymouth and it was there we got his stage and started the immunotherapy trial. Not sure what his next treatments will be, assume abvd as that showed to work in his first lot of chemo after immunotherapy, before they dropped to AVD. But we shall see what the outcomes of his biopsy etc shows and where we go from there!