Hey
my husband goes for his first chemo session tomorrow. He's type 1 diabetic, so access to food is forever in our for-thoughts when planning.
We know his first treatment will be up to 6 hours, but there's been no mention of what, if any, refreshments will be made available. I've made him a packed lunch - nothing smelly, after reading this forum, but snacks are a tough one. He can't eat boiled sweets, doesn't generally snack anyway...but he may want to??
Any advice would be gratefully received.
Hi , as this is his first treatment do send him in with a packed lunch and anything else he likes to get him through his first day. This will give him an opportunity to see what is actually be available and will help you plan better for the future.
All the day units I have been in do provide lunch etc but as I am not diabetic I can’t comment on this availability.
Thank you for your sound advice. I'm not very good at not being in control of a situation. Guess I'd better get used to it eh ! xx
A blood cancer journey and the need for control are not good bed partners
Thank you. They did supply lunch, but he found it easier to have food that he knew the carbs, so I'll probably pack lunch for the next lot. He tolerated the chemo very well
Great news and a good platform for moving forward from
That’s good, I agree it’s a good choice to have foods that you know how to manage against the insulin. Be aware that sometimes they add steroids to the chemo mix which will change diabetes control? However as they know he’s diabetic they may try to avoid that.
Hugs cxx
Moomy
They actually don't seem to be 'that' clued up on diabetes, but that's ok, we're used to having it under good control. He has 5 days of prednisolone at each cycle. Fortunately he's had some of the same a couple of weeks before chemo started. His glucose goes very high in the afternoon and during the night, so his background insulin is increased. Ordinarily he would cycle to bring his bloods down, but he's too exhausted to do anything, and not being able to cycle is his biggest hurdle at the moment.
Hugs gratefully received :) xx
Hmmmm, it might be worth talking to his team about the need for the Prednisolone? If it’s for nausea there are other meds for them to try. I really don’t know why this seems a choice, our lass didn’t have it with ABVD and was ok, but it was a part of another regime she had, but given as an infusion with the other drugs.
if control is hard as the time goes on (my hubs is type 2 but now managed with insulin) especially with his activity levels being off too, that question may well be a good one to ask about. (as background info I was an OT before retiring, and got lots of info about diabetes from a good friend/nurse who I helped with her study on diabetes; also learnt far too much about HL, you can check out my profile for more!)
More Hugs xxx
Moomy
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