Partner diagnosed today and needing advice.

You haven't mentioned a biopsy.  Has one been done yet?  Imaging can be suggestive, but it's not diagnostic.

Hodgkin lymphoma is very treatable, but it sounds like communication has broken down and that's unacceptable.  Perhaps your GP can talk to the haematology team to ensure that they let you know where things are up to and that you're aware of any support available to you.

I can imagine your frustration at the diagnostic process having stalled.  It seems long enough even when everything is happening on schedule, never mind when it isn't.

Yeah he's had it confirmed through a biopsy two and a half weeks ago which is the result we were waiting for this week. 

I have read that it is treatable but all I can think right now is that even if so it is likely to come back

I know it's difficult, but try not to think too far ahead at the moment.  

Focus on what's in front of you right now.  Don't let worrying about something which may never happen rob you of whatever peace you can find among the current chaos.

There are already a range of treatment options for blood cancers and new ones are being developed all the time.  The amount of research currently being done on blood cancers is staggering and the treatments under development are mind-blowing.

Try to forget whatever you think you know about cancer because blood cancers are an entirely different beast to solid cancers.  Stay away from Google.  It's will lead you to a lot of information which is outdated or outright wrong.

When you have more information, let us know so that we can guide you to the most appropriate resources.  And we're always here if you just want a chat.

HL IS indeed very treatable, even after a delay in starting. And the percentage of long lasting remission (they tend not to use ‘cure’ any longer) even in late stages is really very good indeed. 
I hope treatment can be initiated very soon for you both, at this stage I would urge you to get your GP to insist on a haematology appointment speedily to get him seen.

sending hugs xxx

Sucess rate for Stage 1-3 is about 85-90%, for Stage 4 about 80%. So its very treatable, hence there does not seem to be a mad rush because they know its very treatable whatever the stage. All survival rates you might read given as 5-year survival rates, don't misinterpret that - it doesn't mean people are only expected to last 5 years, they measure it in 5-year terms as its very rare to come back after that. 

My lad had a single lump under his armpit but by the time he had been referred 6-8 weeks later he had it in his spleen, around different areas of his neck, and a tiny spot in his chest. Stage 3/4 often have around 3-7 areas of disease but it is usually very chemo-sensitive to chemotherapy. They know exactly how to monitor it and how to assess response. There are different treatments but chemotherapy is usually the front line treatment, but also radiotherapy which has advanced greatly, also stem-cell treatment, and now Car -T-cell therapy is the newest one.

10%-15% chance it will come back but still treatable if closely monitored.

Most of the time is spent waiting for results of scans, but they will know what's best and will look after you properly.

That is really helpful thankyou 

Nikki, everyone has replied with really good advice here. I’m replying to add a data point regarding the effectiveness of the treatments and the timeliness of the start of treatment. It took over a year of itching (an HL symptom) before I was diagnosed with HL. I did have to go through a few more types of treatments than is common because my cancer was chemo resistant, but next month will mark two years remission. So treatment can still be very effective even after a delayed diagnosis or a late start to treatment. That said, now that he has his diagnosis, they should start his treatment soon.

I know that this diagnosis has been very difficult for you and your husband, especially with the journey that you took to get here. It helps to focus on the now and things that you have control over. 

I wish you and your husband the best.