Hi my name is Claire I am 40 years old and was diagnosed with Hodgkins Lymphoma in sept. My first ABVD chemo treatment was scheduled for 2nd of october 3 weeks after my diagnosis.
Although I had fully accepted my diagnosis and have found peace with it, the three weeks leading up to treatment were daunting, I had read a few articles and watched 1 video on you tube which conveyed mainly negative experiences which lead me to feel anxious and unsure of the unknown.
My experience was however a very positive one. On the day of first treatment I was walking into the complete unknown and uncertainty of it all. The minute I walked in I felt at peace, I was warmly welcomed with a nice big leather reclining chair, just in time for lunch, a sandwich and had tea on demand through treatment, the canula I had fitted into my hand was no bother " they first administered what they call a “flush” through my canula which is basically salt solution, this flush you receive in between each of the 4 Chemicals ABVD being administered. You just sit nice and comfy in your chair and the change over of chemos is completely painless. You can get up and go to toilet whenever you need as your hooked up to a little moveable trolly. For the first chemo the red looking chemical they give you a glass of ice water with which helps prevent mouth ulcers after treatment. I had came well prepared with my book, headphones and podcast but barely used them. I just sat and chatted with the 4 other people all receiving their treatment. We all shared our stories, laughing and joking at each others misfortunes, It felt so immensely humbling. After chatting for some 4 hours with these people and feeling that deep connection, I did not feel alone any longer. I have the most amazing friends and family I could of possibly ever wished for but cancer is the most loneliest mental state I have ever felt. At the end of it all all we have is ourselves and our minds. Although each one of our battles is completely different we all shared this underlying understanding and compassion, I felt the moment I walked in.
I have experienced so far very little side effects a little nauseous and tired but thats it and Im 5 days in. I have no idea how rest of treatments will effect me or their side effects but I live with extreme gratitude for all that I have right now. Things could always be way worse and I am just thankful everyday that I even get to wake up.
Hi Claire, looks like we're going through this at an almost identical pace. I am on the 12th day after my first session and going back for part 2 on Thursday. It seems like I had slightly worse side effects than you (nausea, heartburn, fatigue) which kept me in bed for the first three days but seemed to slowly subside. I feel pretty much 100% at the moment... Just ready to start it over again!
I'm glad you could find comfort in chatting with others. Unfortunately It was just me and the nurses for my first session so although they made me feel very relaxed we never had any 'real' conversation. I'm a bit of an introvert anyway so not complaining too much!
I'm with you with regards to being grateful for everyday! Puts things in a different perspective I suppose.
Hope the rest of your treatment goes just as well and you make a speedy recovery!
Best wishes, Chris.
That’s good!
so glad you’ve experienced few problems - but any nausea really CAN be helped, there are quite a wide variety of drugs your team can use, if you get any problems at all then please do contact your team as they truly can help.
keep a careful eye on your temp daily and if it goes up (or down! ) then let your team know, they will have given you a number to check in if your temp goes up beyond a certain amount.
Hugs xxx
Moomy
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