Each treatment very different!

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Hello everyone,

Just a quick question to ask if any of you have found your treatment cycles completely unique?

I have been hospitalised three times just from the first two treatments of ABVD in my first cycle (migraines, chest pains, then neutropenic sepsis), but am day 6 of my third treatment which was put off a week due to the NS (1st of cycle 2) and....touch wood....so far no dramas, other than being sick on the day of treatment, horrid metallic taste (gargling salt water is brilliant), usual tiredness, a few night sweats and insomnia. I'm praying that my remaining cycles are the same, and wondering if my body is "getting used to it". Have been given at home self injections for GCSF to keep the neutrophils up.

I don't have any expectations and am living in the moment as much as possible would be interested to hear other's stories as of course we're all unique.

Warmest wishes to you all.

latchbrook over 4 years ago

Hi Pod5

I can't help with your question but I noticed that you hadn't had any replies yet. This could be because your post has slipped down the discussions list so by replying to you it will 'bump' it back to the top.

"Never regret a day in your life, good days give you happiness, bad days give you experience"

moomy over 4 years ago in reply to latchbrook

Hi, the day before giving yourself the injections, start taking Loratidine (an antihistamine, brand name is Clarityn) as it really does help with the bone pain that can occur with the jabs. What they are doing is to stimulate the bone marrow in your major bones, (so long bones plus sacrum and breastbone) to boost production of stem cells and get them into the bloodstream so they can boost your white cell count against possible infections.
it’s an odd use of an antihistamine but this specific one really does seem to help, USA haematologists use it a lot.

hugs xxx

Moomy

Pod5 over 4 years ago in reply to moomy

Many thanks for your response Moomy. Fortunately I haven't experienced any bone pain with the injections

All the best to you and yours Xxx

Pod5 over 4 years ago in reply to latchbrook

Many thanks Latchbrook :)

moomy over 4 years ago in reply to Pod5

I’m glad you’ve not had the bone pain! Some people really experience it a lot.

keep that idea in mind, though as you may end up being prescribed the jabs after other sessions...

Hugs xxx

Moomy

FormerMember over 4 years ago

Hi Pod 5,

I have definitely found my cycles to be different. Some I felt worse than others on and some I had different side effects pop up at different times of the cycle. Usually though they did follow the same pattern of how I felt but I just got better at managing them or asking for help.

Generally though I've got tireder and weaker as they've gone along. The doctors have said that is normal though as your body undergoes more and more chemicals.

Hope you're doing well

Lily

Pod5 over 4 years ago in reply to FormerMember

Hey Lily, thanks for your reply.

Am starting to notice a pattern after the last two, feeling better the day after chemo - with a dip again come days 4 and 5 before starting to feel better again. It's hard not to analyse every sensation and feeling! Definitely with you on feeling tired and weak.

All the very best for your treatment going forward.

Jane x x x

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Each treatment very different!