Muscle and bone pain

Hi , I am dropping in past from the NHL group as your post fought my eye.

I think our bodies go through far more than we appreciate during treatments, we will often become less active but having a toddler in the house will not give you a moments peace. But you are only a few months out from treatments so don’t be hard on yourself.

You are now in post treatment recovery and for some this takes time. Aches, pains and a stair feeling like Everest can be part of this recovery.

Take each day as it comes, keep a simple diary each day as you can then reflect on how you are progressing and yes, if things get worse you talk with your team but let’s look for this to improve.

Mike

I agree with Mike, your body has been through such a lot, and having a youngster to look after keeps you on the go at the very best of times; take it steady and report to your team if it still doesn’t ease. Oddly, gentle exercise does help post-Chemo fatigue, so maybe give those areas a gentle work and a good stretch out too during the daytime will help ease the aches at night? 
Hugs xxx

Thank you so much for taking the time to reply to me. Your help and advice is much appreciated 

Thank you ️

Thank you x

Hugs  I have no advice as I'm yet to start my chemo but just wanted to reach out. I'm 37 and have a toddler also so and it is worrying me how i will cope.

Do you have much help with your little one? Or are you shielding? 

Sorry you are in pain, hopefully it will ease up real soon. Be kind to yourself

Hi, 

I have older children also, but they tend to take care of themselves and are not so dependant on me, they have been a great help to me at times.  We have been isolating. Which has made things better in some ways and not in others. Try not to worry about if you will cope and just take each day as it comes. Don't worry about "tomorrow"  You will surprise yourself how strong you actually are.  We can move mountains for our children!! 

Hi

Yes very good point, I'm worry about things that havent happened yet, need to keep focused on the here and now.

Thats great your older siblings are helping out. How did you find chemo?

Due to covid  things were not how they would of usually been in normal circumstances. Most of the oncology centre was closed , the cafe area , the advice centre etc, i couldn't have anyone come in with me, everyone had masks on including myself,  However, the docters and nurses were all lovely and very friendly. The treatment itself, i was very sick the first time , i ended up having a stay in hospital. It was due to i needed a stronger anti sickness medicine. once i was given that i managed to cope with the sickness better, and i was given it before every treatment, my regime was 3 days in hospital  for treatment and one day the next week, with treatment to take at home in between. The 3 days were the hardest. It left me very tired. I did notice when i was having treatment and seeing new patients beginning theres, there wasnt enough help to myself or them with medication that is to be taken at home. They hand you a bunch of tablets and explain them all very quickly, by the time i had chemo and got home. I found i had no clue what was what with the medication. So i would advise anyone to make sure if they are given alot of home medication to take the time and go through it all with the nurses , even ask them to write down times and days when to take them. 

Anti sickness is very important. And must be remembered to take at all times because the moment you forget , you can start to feel very sick and its alot harder to control it. 

I think for me, losing my hair has been extremely difficult. Along with eyebrows and eye lashes. This happened within the 2nd week. Things happen very quickly, its hard to take it all in. 

I had sore gums and mouth and needed fluconazole alot for oral thrush. This was hard at times also. 

Once treatment begins, the moment you do not feel well or have any problems the best thing to do , is ring the oncology helpline asap, they are there to help you. Don't suffer or think ,things will be okay it will go away. Because the chances are it wont, and all it takes is a quick phone call and they will help you to feel better again. 

Everyone is different of course. Some do not have any problems whilst others do, and there are different regimes. 

I had Beacopp escalated, which is quite harsh, but i was diagnosed at stage 4. So everyone will be different. 

I wish you well, and i am sure you will be fine. If you need to ask anything im happy to try and help if i can. 

Take care of yourself ,

Thank you so much for talking it through with me and all the helpful tips. Sound slike you had a pretty rough time  are you all finished now?  How are your pains? Hopefully they are settling! Can you try alternative therapies to help alleviate? 

I can imagine how hard it must be to lose your hair, that is a day I am dreading. Did you get an NHS wig? I got myself a wig sorted last week and some hats so I'm as prepared as one can be ♀️

It must have been so very tough having all that to cope with in the middle of lockdown. How strong and resilient a soul you must be braving all your appointments alone.Will your kids be going back to school in September?  

Thanks again for the info xxxx 

Hi, 

Sorry for the late reply. Hectic week!

I hope you are okay? 

Have you started chemotherapy now?

I finished chemo in June, my last scan showed no signs of lymphoma, i am due another scan in a few months. To check everything. However, it is rather odd, because when you are told that the treatment has worked etc, it doesnt really seem real. None of it does to be honest, but i kind of feel like its still there or worry it will come back. I supose this is normal. 

I still have aches and pains, some days it isnt to bad,others it is. I'm due for a check up soon. Blood tests and things, to make sure things are okay and to talk about why i am in pain. Im guessing it is just the whole process of it all. And the toxic that is put into our body's. 

I purchased some wigs online. But i find them to be itchy and annoying at times. If im home i just wear a head scarf. I dont know how women go out without covering up at all, i mean, they are just so brave to be able to do that, i wish i could but i just cant do it. My real hair was very long and i have not had short hair since i was little. So i just cant get used to it and i am wanting my hair back so badly. 

Although, some wigs are amazing and better condition than my real hair was. So it can be fun trying new hair styles and colours,using wigs. 

My children are due back to school soon. It is very worrying 

I hope all is well for you