Going stir crazy

FormerMember
FormerMember
  • 5 replies
  • 22 subscribers
  • 3952 views

Hello,

I was declared in remission from Hodgkin’s in December after 2 cycles of ABVD and 4 cycles of Esc-BEACOPDAC, with the caveat that I had to have 1/2 my thyroid removed as I had Papillary Thyroid Cancer. they removed 1/2 my thyroid in January and a small round, smooth rubbery lump around 1cm appeared around 1cm above my collarbone, on the left hand side. I then had to get the other half of my thyroid out and it ever so slightly increased to 1.5 in size but hasn’t changed in the last two weeks.

I took the lump to see the haematologist and he didn’t know what to make of it, so ordered a scan, but was optimistic it was nothing. I got the results back last Friday, no evidence of disease was the outcome and the CNS said that they couldn’t see anything they were worried about. 

However, this hasn’t really done much to reassure me as I’m constantly thinking about it, all this time in the house is making it worse. Thoughts such as have they missed something, is it to small for them to pick up on the scan, what happens if it’s back so soon...absolute panic merchant.

I remember that it’s not as hard as the Hodgkin nodes were and it’s can be pushed in with enough force and compressed a tad and my Hodgkin tumour was doubling in size every week, however, absolutely terrified that it’s back. But again I’m getting well ahead of myself. Any reassurance will be most welcome. 

  • Hi again and I do understand the "what if's"

    I had a different type of Lymphoma and following my main treatment 2014 all my mass was gone..... then a year later I found a little lump about the same size as yourself in my neck....... but as I was still going through treatment and having scans it was identified as not being and issue - a faty lump I was told.

    It took some time for my brain to understand this and in the early days I kept playing with it and totally convinced myself that if was getting bigger....... but all I was doing was irritating it and my wife kept shouting "stop touching the lump"..... now I have forgotten about it and moved on.

    It would be worth having a look at this great paper as it does highlight the milestones in the post treatment recovery.....and one of the steps is trusting your body again.

    Keep safe.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Hi,

    it’s like your living in my head lol!!!! Thanks a lot I will take a look at the paper!

  • Hi Craig,

    you said it yourself, it feels different from the HL lump. I’m sure it should be ok, they’ve removed it to check.....I think you have to rely on your team!

    however do keep a check (but not constantly otherwise you’ll make it inflamed!) and report to your team if you notice a difference.

    dont forget that bodes (even after HL and chemo) can still be reactive for infections...

    hugs xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Me again...

    The lump kept getting bigger so they decided they would do an Ultrasound followed by core needle biopsy.

    The Consultant Radiologer said that it wasn’t a lymph node and that it didn’t have a blood supply. When he biopsied the mass a white material cane out, although it wasn’t a liquid it was a solid? 

    I am hoping this is a good sign because I can hardly sleep at night...

  • Yes, agreeing with you that this indeed is a good sign.

    ((hugs)) 

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge