Son with HL

HI, 

My son was diagnosed  aged 20 whilst at Uni - and deferred the year whilst he  went through AVBD . 

Its tough - was such a stressful time.  Is he having a scan after  the 4 th treatment?

Rose

Hi  and a second welcome to the Community, although sorry to hear about your son and indeed about your treatment - a double hit on the family but this will all pass.

I don’t have HL but have lived and been treated for a rare type of NHL for 20 years, during this time and also on this Community I have talked with lots of 20 and 30 somethings who have had ABVD, yes hard work for some but a very effective treatment with great results and on the whole all do-able.

Chemo has came a long way over the years and the old stories are not the way it goes now.

Its good that he is doing good and this is an encouragement to you all. Keep focusing on the greater good in all this and let’s see him get an all clear.

When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.

Keep posting as this is a safe and supportive place .

((hugs))

Hi again , as you see from my profile I’ve been through having a daughter with HL and only after all that was sorted I got diagnosed myself with bc! So mine was the other way round.

however I found my own cancer was easier to deal with than seeing my daughter go through such a lot; you want to protect your children and it felt as if I’d failed because she got cancer! Of course that’s rubbish as we know really well, but it still felt like I should have had it instead of her!

any queries, please feel free to ask, plus thanks for accepting me as a friend as we can talk ‘off forum’ if needed.

sending you a big hug xxx

Hi, 

My Son was 19 when he was diagnosed earlier this year with Stage 3 HL. It's been a very emotional few months, he was offered a clinical trial which we decided was the best option for him. 

He is now on his 4th and final cycle of chemotherapy and I'm pleased to say that his interim scan has come back as all clear!! 

My Son has been stronger than me and his Dad put together and it's got him through.

My advice would be to stay strong, think positive and know that there is a light at the end of the tunnel xx

Lots of love to you all xxx

Hi

My son was 14 when diagnosed with Stage 3, it is such an awful emotion and its is life-changing. Just lost my mom with a brain tumour and my dad has prostrate cancer. But thsi was the one that knocked me about, and still I struggle nearly a year on.

I found coming on here a superb outreach for me, you may see how emotionally fragile I was by reading the very long thread I posted on here (go back a page or two).

As I say, there are soem simply wonderful people on here.

Stick in there & stay strong, but I was emotionally wrecked by this, but he was so strong. Young people are surprisingly resilient!

Hi Rose 

Yes, he is. PET scan booked for 25th November ahead of 5th treatment on 28th. Fingers crossed!  

He is being amazing.........I'm so proud of him.

Andrea

Amazing news! I think we find strength from places within us that we didn't know existed at times! 

Thank you for your kind words....

xx

Hi,

my 36 yr old daughter has hodgkin’s  lymphoma she was stage 4 when they finally diagnosed her 3 yrs ago. She is much stronger than me and gets on with the treatment and enjoys herself when she can. My husband also has cancer melanoma he is on palliative care. This site is wonderful you learn a lot and realise there are many going through this. I agree it’s much harder when it’s your child somehow they become the grown up ,worrying about you. Stay strong, one day at a time

daisy rose

My 14 yr old daughter was diagnosed in November with stage 2B. She is now in her second cycle of OEPA, pet scan in early Jan followed by two cycles of COPDAC (and possibly other treatment dependant on pet scan results).

How was your son’s scan?

x

Hi EKM

Sorry for the radio silence - there has been a lot going on! 

My son had to start Escalated BEACOPP in January because his scan wasn't clear. The lymph nodes showing up were behind his trachea so his team didn't want to perform a biopsy because of where they were - too high risk. 

He coped well by and large but on the 12th day of the first cycle became neutropenic and was hospitalised for 5 days until his levels came up. On the same day of the second cycle the same thing happened but this time he was septic and quite poorly. He developed an large abscess and had surgery to remove it before he was discharged. 

I'm thrilled to say that we heard last week that he is now in remission! He has a long way to go in terms of healing as his abscess site was pretty large but he's excited to have his PICC line removed so that normality can resume to an extent! 

x