Ok so I had my first chemo sesh Monday (ABVD), I was feeling quite smug after not getting any side effects until today although I'm blaming them on yesterday's flu jab rather than chemo , as I'm more in discomfort with a bad back from not being able to sleep on either of my arms one because there is a picc and the other with the Hodgkins lumps and then the muscle pain from the flu jab.
Has any body found a way around not noticing the picc line and being able to sleep on that side without worrying your gonna yank it out of its place ?.
I'm so tired I haven't gotten dressed today but I guess that's ok .. how long am I looking to being like this for , I need some hope in knowing I won't waste a week away in bed like this.
My PICC was on my right arm and I have slept on my right side most of my life. My mass was on the left of my neck so sleeping on my left was out and I could never get to sleep on my back.
First make sure you have a cover for your PICC, you can get tube dressing from your team that can keep everything together but my daughter is a whiz with sowing machine and made a felt cover that had poppers with a little pocket for the dangling ends to go into. Some folks found things on Amazon and there was a lad who used one of these elbow support socks and just put it further up to cover the pick.
After a few attempts I found a stool that was the correct height (including a pillow) and slept with it at the side of the bed and I sleepy on my right with my right arm extended onto the pillow and if it got cold we had a small blanket to cover it.
It is all trial and error.
Try extra cushions and pillows, it’s not easy but you’ll get tired enough to sleep at some point!
After my operations for breast cancer I propped myself up to sleep virtually on my back, but part sitting up of course. It took a good few weeks before I could turn more onto my side, and probably a couple of months till I could lie properly on the side away from my mastectomy and implant. you do need to think about how to prevent yourself slipping down in bed of course.....
hugs xxx
Moomy
Thank you again for the response looks like we've twinned with it as my masses are also on the left and picc in my right , as it happens I had a sleeve arrive yesterday and since they re-dressed it for me sleeping has been better , I think my first week was deffinatly a trial and error run with how it was last dressed away.
I speant 5 hours in the hospital the other day waiting on blood clot scanning , I got excited as I thought they were going to remove my picc for a while, but they were just teasing me and got me on 3 months worth of blood thinners, adjustment period to that has passes in just a few days, running out of space on my tummy though now.
Can I ask if you are clear of touyour r Hodgkins now and how long did your treatment go on for ?.
Good morning , good things have settled down and yes, trial and error is often the case in the early days, I always say expect the unexpected as it can be like a rollercoaster.
I did not have HL but a rare Skin Non Hodgkins Lymphoma so my blood cancer journey is rather different in so many ways but everyone is in the same boat with regards to the end goal we are all aiming for.
I have a few friends in our local Maggie’s Centre Heamatology Support Group who have HL and their treatment lasted a 3- 4 months with some getting the all clear half way in.
You can look at my profile Thehighlander but it is a long complicated story so make a cup of coffee....... but in a nutshell - I started my journey way back on the 10th May 1999 to eventually be told that I would never be in remission from my condition......... then zoom forward over a17 years to the 19th September 2016 to be told I was in Remission and NED (No Evident Disease)
So a happy man and the best thing is that very very few people go on a journey like mine.
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