Hello...

FormerMember
FormerMember
  • 4 replies
  • 21 subscribers
  • 4110 views

Hi Everyone

I was diagnosed HL (stage 2) 10 years ago and was treated successfully 

Yesterday I was diagnosed again (stage 3)

A little shell shocked today !

  • Hi  I am Mike and I help out around our blood cancer forums.

    Welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear that your HL has showed it’s head again.

    Have your team given any indication as to how they are going to move this in a positive direction?

    I had NHL but from talking with HL folks who have relapsed they have been treated successfully. Let’s look for some of the HL folks to come along and connect with you 

    You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

    We also have our ‘Ask an Expert’. section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

    Always around to help out.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Hi

    thanks for your comments 

    the plan so far is to get to remission and then Stem Cell treatment

    this is slightly complicated by the fact I have a Heart prob 

    im having a Carido scan on Fri and then an appointment on Tues to discuss treatment 

    Feels like it’s all moving in right direction 

    im aware things have moved on since 10 years ago and I’m not sure what to expect but my consultant seems very positive 

  • Hi again, I have been through two Stem Cell Transplant with cells from my brother so totally understand the journey you are going on.

    The Tests before you can get on Stem Cell Transplant (SCT) are extensive as the SCT can be hard work.

    We actually have a dedicated Stem cell transplants for blood cancers forum where you can connect with folks on the same path.

    I will keep an eye open for you.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to FormerMember

    Best of luck with your treatment st1ngo.