Hi everyone
I'm Mike (36) and in May I was diagnosed with stage 3b classical hodgkins lymphoma. I completed cycle 3 of ABVD yesterday and it's been bearable so far. I tend to have a bad week where i feel extremely tired, muscles spasm, sore feet, stingy type pains and a bit of a sore tongue and then a week of feeling reasonably normal.
I had my interim pet scan almost 3 weeks ago and it was consistent with complete metabolic response which I was obviously really happy about. They have now dropped the bleomycin for the remaining cycles.
However for the past week or so I have been having night sweats. Not as bad as they were at the start of the year but enough to make my tshirt have big patches around my neck line and need changing, so I'm a little concerned.
My haematologist is away on holiday at the moment but I'm seeing him on Wednesday. In the meantime I went to the hospital and saw a different doctor who ran a blood test and said other than I'm slightly neutropenic and an infection marker was at 15 (sorry dont remember the name, it was a protein value) which is normally 0-5 there wasn't anything he was worried about. My heart rate also has increased by around 20 beats per minute since starting treatment.
He added that night sweats generally only occur if your tumours reach a certain combined mass and that it's highly unlikely I would go from a clear pet scan to that within 2 weeks as hodgkins doesn't grow that fast. So that put me at ease a bit.
I've searched these forums for others having the same thing and theres a few people who seem to have experienced it, but I cant find much on how it all turned out for them and if it went away etc.
I'll see what my regular haematologist says next week but until then I was just wondering if anyone else had any experience of this or thoughts on what the doctors opinion was.
Thanks in advance.
Mike
Hi Mike and welcome to the Online Community, although I am sorry to see you finding us.
I am also a Mike Thehighlander and I help out in our blood cancer forums. I was diagnosed with NHL over 20 years ago so yes, a different type of Lymphoma but the journey can be rather the same.
Night Sweats during treatments?........ well a yes from me. My team said not to over think things like this and other small health issues as my body was going through lots of chemical battles and from their point of view it was not an issue.
Even after all my treatment was complete I still had a few sweat episodes, again checked out and nothing wrong a few little infection markers but not enough to require treatment.
Lets see if any of the HL folks have any first hand experiences.
See what your consultant says on Wednesday and take it from there.
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