Hi all, 21 year old female with stage 3 Hodgkin’s lymphoma, looking for any advice.I was diagnosed February this year with lymphoma in my neck lungs and chest and have now completed 6 months of ABVD chemo (12 sessions) and getting results on Wednesday.
after 2 months of chemo(4 sessions) I had a pet scan and the cancer was gone from my neck and lungs but remained active in my chest. I then had another 8 courses of ABVD and did another pet scan for results.
im worried that the cancer won’t be all gone and will have to do radiotherapy. I didn’t cope well with chemo it was very tough for me as I developed a phobia of chemo treatment and anything to with hospitals causing me to continuously throw up for the entire 3 hour chemo sessions every time.
to Anyone who has had similar treatment for Hodgkin’s lymphoma, was the 6 months of chemo enough to cure it?
Or if not did you have to do more chemo?
Or how many weeks of radiotherapy did you have to do and what was it like as I haven’t been told anything about radiotherapy yet.
also, did ABVD cause infertility for anybody as that’s a big fear of mine as I’m only 21.
any advice or similar situations explained would be greatly appreciated thank you !
Hi Steph Tiffany203 and it’s good to read that you have been told the remission word….. some people find navigating the post treatment world as challenging (in some ways) as going through treatment.
You may find it helpful to make a cuppa and have a look at this great paper After Treatment Finishes - Then What? by Dr Peter Harvey as it highlights the post treatment milestones.
You may want to also check out Lymphoma Action. Lymphoma Action is the main UK Lymphoma Specific Charity who have lots of good reliable information, videos..... basically all things Lymphoma....... pre, during and post treatment.
They run various Support Platforms… I highly recommend these groups as this will widen your support base and there is nothing better than ‘talking’ with others….. and you may find the dedicated monthly ‘’Remission’ online Support Group very helpful.
They also run the very good Lymphoma Focused Live your Life Course that is a peer-led self-management course.
The LA helpline is open every week day from 10 till 3 on 0808 808 5555. This is a safe place to talk things through and get support.
