Newly diagnosed

FormerMember
FormerMember
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Hi all, 

I just received the news yesterday that I have Lynch Syndrome. The accefted gene for me is the MSH2. This was definitely not a 'club' I wanted to join but now that I have, I wanted to say hello. I also beleive that it is better to know and now my family can get tested, too. I know my mum or dad will definitely have it (they are, thankfully both very healthy) but I am hoping that my sister and brother will have escaped the gene. Luckily I don't have any children that I could have passed the gene on to. 

How do you all find lilving with Lynch Syndrome?

  • FormerMember
    FormerMember

    Hi and welcome to the club. I'm a Lynchie and founder and trustee of LSUK. Www.lynch-syndrome-uk.org

    We have a closed Facebook page with nearly 2000 members, the support in the group is amazing. Go to Facebook and search Lynch Syndrome UK.

    It's a lot to get your head around but knowledge is power and with screening any nasties can be caught early. You are welcome to private message me but have a look at our website and join our support page xxx

    Love Hell xx