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Would anyone have any experience with proton therapy? I took part in the Looc trial. Which was fine. I turned down pathos trial as didn't want more surgery. I have chosen chemoradition treatment but my oncologist has offered me Proton Therapy as...
I am seeing my proton radiologist 1st time Monday. Almost 8 weeks after jaw, free flap operation and lymph involvement. Girlfriend has contracted covid and isn't really taking any precautions. Will also be in car on way to 1st meeting for 3 hours. ...
Good Morning Folk. Not been on in a while but just need to enquire, well maybe seek some reassurances. I am now 9 weeks post treatment and have managed to reduce fentanyl to 12 mcg. These past two weeks I have felt physically and emotionally shocking...
Challenges coming thick and fast...mouth and lip blisters hampering eating...Oramorph and Caphosol supplied ...as ever Ninewells support teams have been brilliant...nothing too much trouble....Sound advice from Gemma (Macmillan)...any problems? let the...
Hi did anyone else have problems once skin/flesh was taken from inside of arm above wrist to rebuild tongue? my partner has spasms going up his arm. Physio has been waste of time and after scans, X-rays & electrode recently it sounds like they may at...
Greetings All, I have not logged in for a while. I am now 5 weeks post treatment. HPV on the right side of the neck (lymph nodes) and the right tonsil. Status to date: teeth and gums very sore on the back right side, food mostly still tastes awful,...
So writing this in the RT waiting room. Day 3 week 2. had a bad weekend post chemo 8 days ago, once the anti - sickness drugs finished, I went downhill fast, couldn’t eat or drink. Became dehydrated and was readmitted to hospital for IV yesterday. Didn...
Hi. I haven’t posted here before but I have found reading the discussions very useful. My partner, a very fit 56 year old, was diagnosed with base of tongue cancer HPV16+ T1N1M0 in late Feb after a month of tests. He’s had 5 cis then carbo platin chemos...
reforne here . I am here as a consequence of two cancers in the neck. one in my lymphatic system on the other side 8 years later in my neck muscle. I endured two radical neck dissections and 98 radiotherapy sessions into my neck and I am still here. Mind...
Well I got my results have to have bone put in and jaw reconstructed, but the waiting to hear about op is horrible I have a pegbfitted into my tummy so I imagine nit too long now, but I’m noticing swelling in my neck now ear hurts a bit and tumours spreading...
