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Hi, total novice here. Please bear with me. Not very confident in groups. After reading some posts and their advice which has lifted my hopes at times and helped me deal with what we are going through, I plucked up the courage to write this post. little...
Hi My partner has hpv related oropharyngeal cancer which originated in the tonsil. This has spread to a few lymph nodes on both sides of his neck, back of tongue and tongue muscles. The largest neck node was 8cm. His treatment is underway which consists...
Hi, I'm now seven weeks post treatment (oropharyngeal cancer) and for the last week have had an absolutely vile taste when I drink or swallow. I imagine the taste is like drinking water that has had rusty nails in it. I assume that the taste is due...
My partner was due to have his feeding tube replaced this week. Last Thursday he saw his consultant radiographer who talked him into just having it removed and cutting down on all his medication. It's 6 weeks since he finished his radiotherapy. Anyway...
Well as you know I am struggling with my swallowing, I can’t even swallow mucus, well I had my appointment with my ENT Consultant on Thursday and he looked at my throat through the camera up my nose and I have to have my throat stretched. I just wanted...
Hi All I am 12 months post treatment for stage 4 tonsil cancer and secondary lymph nodes. I was dependent on the PEG for 6 months. I am really struggling with eating, I have no interest in food, I have really painful teeth and even though my taste buds...
Posting here on behalf of my dad he got diagnosed with tongue/throat cancer back in 2022 he started radiotherapy this year and had 5 sessions a week for 6 weeks and the last session was at the beginning of June since finishing treatment he has had an...
Hi every one, I'm l on day 12 of radiotherapy out of 30. My taste has turned rancid. Everything tastes horrible. Any advice on what is better to try.
Hiya all, After an anxious two-week wait, I have had good news from my first PET scan. "Complete response" and there is no evidence of disease!! Obviously too soon to say "cured", but it is the best result that can be reported. My oncologist said...
Hi, just thought to update everyone I have posted here at the beginning of my treatment. I have finished 13 weeks ago my 7 weeks of chemotherapy and have had the PEt CT scan last week. I’m due to see my oncologist on Friday the 6th however I have...
