Good news!

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Hiya all,

After an anxious two-week wait, I have had good news from my first PET scan. "Complete response" and there is no evidence of disease!!

Obviously too soon to say "cured", but it is the best result that can be reported. My oncologist said that the tumour has now gone.

They want to do two ultrasounds (baseline and a check in a few months) on some of my neck lymph nodes that have not completely gone back down to normal. However, these nodes are not lighting up on the PET scan, so they are fairly confident that this is healing not persistent disease.

The oncologist said, "This is a good result, given where we were (4cm tumour, nodes on both sides etc.)" - the last bit sent a shiver through me and had me profusely thanking her, while hanging onto her hand and making serious eye contact.

The relief is huge...  

Wishing good outcomes for all.

Steve

 

  • Well done Stevey 

    It’s a monumental milestone. Now it’s a plod to full health but Hell! Doesn’t that “complete response NED” give you a huge filip. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Steve did you have surgery to remove the tumor before treatment 

  • It certainly does, Dani  

    Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0

  • No, just chemoradiation.

    Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0

  • I've not yet been diagnosed , awaiting biopsy results was told that consultant was putting me on antibiotics then app was cancelled and seeing another consultant . He's organised for me to go for a pet scan tomorrow , mri on Wednesday,  biopsy has now been sent to haematology and seeing consultant Thursday all being well he's not striking and app canceled

  • Hi Steve that's a great result, and great news.

  • Hi Steve

    Fantastic news Im so pleased for you !

    its great to read such a positive result 

    I have feeding tube fitted this Friday followed by Radiotherapy then Chemo for 7 weeks starting Monday Im also T4a3N MO HPV +
    Thanks for sharing 

    Debbie

  • Thanks, Debbie!

    Good luck for your treatment. There are lots of people who have achieved similar outcomes.

    You can get through this.

    Best

    Steve  

    Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0

  • Thanks!

    Diagnosed Feb 2023 with base of tongue cancer, oropharyngeal squamous cell carcinoma (OPSCC), HPV positive, staging: T4aN2CM0

  • Hi Steve well done  always great to hear. Helps others who are following in our footsteps. I’m now past the magic 5 years but can still hear Dr Sen ssys complete response to treatment. No evidence if disease and giving me a hug. There’s moments like that you never forget . Now carry on living. 
    hugs Hazel c

    Hazel aka RadioactiveRaz 35 radiotherapy and 2 chemo  3 rd cancelled. HPV tonsil cancer 7 lymph nodes. 8 years post treatment living a great life. 
    No questions too daft to ask. 

    I’m also an ambassador for https://oraclehnc.org.uk/
    A leading head and neck cancer charity. 

    This is a link to a series of webinars on head and neck cancers. There will be updates as more are added.