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Hi again all, My husband will be undergoing 35 rounds(?) of radiotherapy for T4 N2b M0 base of the tongue cancer. Regards radiotherapy - what do you know now that you wish you knew then? e.g I hadn’t realised radiation can/will burn the skin on...
Hi everyone, my name is John, I joined the group when I first got diagnosed with a tumor in my nasal cavity wich had eaten patr of the bone away after a pet scan I got told it was a t3 tumour wich had spread to my lymph nodes both sided in my neck the...
We get a lot of questions about PBRT. The Christie is running an afternoon Zoom session tomorrow if anybody is interested. I’m going to pop in and have a look. You have to get a free ticket via Eventbrite. www.christie.nhs.uk/.../proton-beam-therapy-consumer...
Hubby has had first course of immunotherapy and has developed anxiety and panic attacks (now on meds to help) has anyone else experienced this or is it more likely to be his new diagnosis (cancer now at base of skull previously tonsil area which is apparently...
Hi all, My RIG tube fell out today! I was just about to be 100% tube fed for nutrition and hydration. So that sucks... I have been admitted and currently waiting (and waiting...) for IV fluids. The balloon inflation valve on the RIG failed and...
Letter from surgeon who I saw 7 days ago saying no evidence of residual disease I’m in shock as he didn’t say any At appointment I’m not sure how I feel
Hi everyone, so I have my operation on Friday to remove my nose. I would like some advise on how to cope with waking up after the operation and things to do in hospital. 5 day stay. I think that's normal right? I'm pleased to be going in now, as I...
Hi, I finished radiotherapy mid March and had the usual side effects - mouth sores, swallowing issues, loss of taste and fatigue. Out of the blue last week I started with double vision and have wear an eye patch as I can’t move around otherwise. I’m...
Hello Everyone, I hope everyone is doing well. I'm sorry to post in here but just needed a vent, as I'm literally going round in circles. So, about 5 years ago I was referred to ENT by my dentist for a small lump in my mouth. Attended the appointment...
Hi everyone. Hope everyone is proceeding on their journeys through this new world we all find ourselves in. We have just competed week 5. right tonsil and lymph nodes..I'm unsure as to exact terminology. It is p16. Anyway, Hubby is doing well and...
